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New to the prostate cancer club

Prostate Cancer | Last Active: Dec 14 12:55pm | Replies (18)

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Profile picture for jeff Marchi @jeffmarc

As you probably know your Gleason 10 makes your cancer, extremely aggressive. The results of the PSMA Pet scan will let you know whether or not surgery is even an option. If it has spread outside the prostate, then they usually don’t want to do surgery, they want to do radiation because it can treat both the metastasis spread and the prostate.

Very frequently it has not spread outside the prostate, which gives multiple options.

Were any of these things found in the biopsy intraductal, cribriform, Seminal vesicle invasion, EPE or ECE. (Extraprostatic extensions extra capsular extensions). They can make the cancer much more aggressive, even with a Gleason 10.

Hopefully, you are working with a center of excellence, Because of the Gleason 10, the probability of a reoccurrence is very high. You want to work with the best doctors you can find. You need to speak to both a urologist that does surgery and a Radiation oncologist. With a Gleason 10 It would also make sense to find a Genito Urinary Oncologist to help direct your treatment. That type of oncologist specializes in prostate cancer, unlike medical oncologist, who work with all different types of cancer and aren’t able to concentrate just on prostate cancer.

Because you got prostate cancer so young you should get genetic testing to find out if it could be a factor. Does anybody else in your family have cancer? You can get it here for free, takes 2 to 3 weeks to get the results and a genetic counselor will call you. They will send you a kit that you return in the mail. You have to live in the USA to get this test for free.

Prostatecancerpromise.org

I got prostate cancer at 62, 16 years ago. I have the genetic problem of BRCA2, That causes cancer to keep coming back. I’ve had four reoccurrences. I’ve had surgery and radiation and multiple different types of drugs over the years. I also attend nine prostate cancer online meetings every month and many online webinars about prostate cancer. The more you know the better.

Since you have a Gleeson 10, you should consider coming to an ancan.org Advanced prostate cancer meeting. They are held weekly. The next one is next Tuesday at 3 PM Pacific time. If you have your PSMA Pet scan results it would be best. If you get there about 10 minutes early, you’ll be the first person they talk to and they can Give you some great advice on treatment. They’ve been helping people for 15 years. There are three doctors at every meetings, and frequently more than three.

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Replies to "As you probably know your Gleason 10 makes your cancer, extremely aggressive. The results of the..."

@jeffmarc I agree 100% with Jeff's assessment and advice....particularly the importance of working with a Center of Excellence with a multidisciplinary approach to PC treatment