@lgreen809 The first leg of any journey is usually filled with questions, concerns and yet hope for a positive experience. Often, one of the things that can help make a journey more successful or comfortable is being able to speak with others who have already walked that path. So, welcome to Mayo Connect where you’ll meet a number of members with CML such as @dmmurph, @suzie71 @billybee and others who share their experiences.

Since you’re new to your CML diagnosis, would you like to share a little more about yourself? Were you having symptoms that led to the diagnosis? How long have you been taking the Gleevec? Are you noticing any improvements in your symptoms?

@lgreen809

I was diagnosed in 2018, started on Sprycel 100mg shorty after. Worked through some side effects, fatigue and edema being the ones I still deal with. Recently started on a water pill that seems to help the edema some.
My tests have came undetectable for almost 2 years now.
I have been given the option to stop taking the sprycel, very uneasy about what happens if/when treatment would have to start again. So little information out there.
I have opted to reduce to 50mg and am ok dealing with side effects for now.
The whole thing was very scary in the beginning. I chose to deal with it the best I could, adjust my life as needed, and keep moving.

Hope your journey goes well.

@lgreen809, how are you doing on Gleevec?