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Small Fiber Neuropathy: What helps?
Neuropathy | Last Active: Apr 16 9:40am | Replies (274)Comment receiving replies
Hello @lisadog33,
I'm truly sorry to learn about your diagnosis; however, as you will see, you've landed in a great community here. First, I'd like to introduce you to one of our Mentors, @johnbishop who has written extensively about small fiber neuropathy (SFN), and has share his experiences in many of the groups on Connect. If you wish, you can view a few discussions, here:
- Anyone here dealing with peripheral neuropathy? http://mayocl.in/2oeHFAG
- Diagnosed with PMR 2 1/2 years ago. How do I manage the extreme pain? http://mayocl.in/2oeSra7
-Does anyone have a treatment for Neuropathy due to chemo http://mayocl.in/2o96rVU
If you scroll through these discussions, you will see that John has provided some excellent links to resources.
I'd also like to tag @magg @cjkressin @brie87144 @islandhippy @lucille @rabbit10 @emilyanne @medic7054 @fleure @martid @painwarrior, as I'm sure they will have more insight for you.
With regard to your concern about the other symptoms, here's what I found: According to this NIH (National Institutes of Health) page, http://bit.ly/2nyTseH, " some affected individuals have urinary or bowel problems, episodes of rapid heartbeat (palpitations), dry eyes or mouth, or abnormal sweating. They can also experience a sharp drop in blood pressure upon standing (orthostatic hypotension), which can cause dizziness, blurred vision, or fainting."
Are you taking any medication for pain, @lisadog33? Do your symptoms get worse/better at certain times of the day or night?
Replies to "Hello @lisadog33, I'm truly sorry to learn about your diagnosis; however, as you will see, you've..."
Everything is pretty much constant. I don’t take any meds for this either.
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My name is Elisabeth. I am 71 years old. I have itching, burning and pain in both my arms. it used to be sporadic, more in the Summer and when stressed. I broke my left arm in three places walking a dog and i since have had these symptoms almost permanently with period of slight remissions. During the remission periods it is still very uncomfortable. When i have a serious episode, it is very painful. During the first five months after I broke my arm, I basically spent a lot of time in bed (not because of the fracture) but the stillness calmed my nerves. The pain clinic at Mayo prescribed Gabapentine which helped with the pain, but I slept 14 to 16 hours a day. I had to stop. I live in Phoenix Arizona. I can never be exposed to the sun or the pain will start. My sister who lives in France is afflicted with the same ailment. she is 72 years old. Her doctors have told her to live with it because it is a disease of the elderly. Another one told her that she has used all of her sun capacity (whatever that means-I have never heard of such a thing) and to stay indoors. The problem is that even when there is no sun we both go into lengthy and painful episodes. I have gone through several doctors but no one seems interested enough. I finally was able to recently see a Mayo neurologist. I really like him. He prescribed an EMG recently. I believe he will be the one to help me. Let us hope so. If anyone who reads this blog has the same symptoms,