Replies to I decided the side effects of the antibiotics were too severe, the duration for taking them…

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MAC & Bronchiectasis | Last Active: Apr 23, 2017 | Replies (16)

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@flib

I decided the side effects of the antibiotics were too severe, the duration for taking them too long and the recurrence rate, two years, too short. I was diagnosed seven years ago. I am now 80 years old. I do not regret my decision. I have had fairly good quality of life, able to travel etc. The mac x-rays and scans have been stable for the past few years. I also have bronchiectasis which is not treatable. I recently got a mild pneumonia so not feeling so great now but a bit better every day. I know some people tolerate the drugs well but others are truly miserable on them.

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Replies to "I decided the side effects of the antibiotics were too severe, the duration for taking them..."

Terri Martin, Volunteer Mentor | @windwalker | Apr 23, 2017

I too was diagnosed back in 2005. I opted to skip the three drug treatment also for the same reasons. I did a stint of antibiotics for like 10 days and that beat the infection down for awhile. It showed up again in 2013. Mayo drs put me on alternating month antibiotics for three yrs. One month it was cipromycin, the next month doxycycline. I am now on alternating months of inhaled tobramycin for 28 days, then 10 days a month of clarithramycin. So far, this treatment plan has been the best. Have been breathing clear and zero cough for the lasy 9 months. Terri M.

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