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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Dec 6 3:07pm | Replies (6692)

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Profile picture for jimminnesota @jimminnesota

I am 64 and have been diagnosed with non diabetic neuropathy. I was told by a neurologist that 30% of people with this have no known reason for it and I will just have to live with it. Was given gabapentin but am reluctant to take it because of the side effects. Is there any treatments? Is there anything I can do? So far it is just in my feet and has been slowly getting worse over the past 2-3 years.

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Replies to "I am 64 and have been diagnosed with non diabetic neuropathy. I was told by a..."

@jimminnesota I have PN also and am not taking anything except alpha Lipoic acid, 600 mg daily. Starting g to have some ankle swelling and not sure if it’s related to the neuropathy. Anyone else having swelling? I exercise, work part-time and stay as active as I can. I’m in my mid70’s.

@jimminnesota Also from MN w neuropathy, which I had before with pre-diabetes. Now in full diabetes. I switch out my shoes and socks during the day and I think that helps. Hokas are a God-send for me during the day but late afternoon, I switch out to a Keen shoe with a smaller sole. Just that one shoe helps me - it's more flexible than the Hoka. Can't wear either shoe all day and I need the arch support and stability, but I went to podiatrist who fitted me for orthodonics and diabetic shoes and they don't help me nearly as much. Try to exercise the feet to keep the circulation going: walk, foot flexes, try tip-toes (with support), stationery bike. Had friend who went through all kinds of "treatments" that didn't work. I would say the neuropathy has plateaued BUT, for me, consumption of sugar makes it worse. Doc suggested I look into CBD. 70 years old. I did gabapentin for two years several years ago and had no side effects other than to be happier. Still, trying to keep off off prescription drugs as much as possible.