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MAC & Bronchiectasis | Last Active: Apr 23, 2017 | Replies (16)
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Replies to "@barbjh Welcome to our Forum .. glad you found us! Do you have a first name..."
Hi Katherine, sorry for the delay in getting back to you. I have not been feeling the best - mostly GERD and stomach issues. I also am still trying to get clarification on whether I have bronchiectasis. I asked at my appt and he did not seem to know for sure so I emailed him and asked for clarification. Still have not heard back - they said the email got forwarded to Dr Aksamit. Since they do not want to see me for another year it is important to get answers to all my questions. Dr Aksamit is great at that. They suggested using their Mayo clinic nasal spray and you mentioned you used it. Does it work well for you? I have been using the saline rinse which seems to help and Flonase but hate the smell of the Flonase. You have been through a lot. It is always kind of scary knowing I have these nodules growing in my lungs along with this infection. But on the flip side my mom had it and was never treated, and she is 92. Barb