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Does anyone have multiple diagnosed illnesses besides P/D? I have 5+
Parkinson's Disease | Last Active: Dec 9, 2025 | Replies (43)Comment receiving replies
@janna2 Doctors need a good laugh every now and then. In fact, al our health care professionals could use a joke here or there, given that their plates are so full. And we neeed to think of ways to help them help us, like coming to your doctor's appointment prepared like you would for a meeting, current status, any quesstions, any observations that may be helpful to your doctor to know, a list of meds that you need refills for, etc.. So many folks have the expectation that doctors know everything; they know alot but they can't read our minds and, given that PD seems to be have unique manifestations for each patient, any info you give them may be like that last puzzle lpiece on a jigsaw puzzle, that brings the whole thing together.
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@jatonlouise My doctors all listened to my bunch of symptoms/disease/disorders but chose to ignore thesestated outright that they would ONLY treat "the four signs of Parkinson's" .... my list did nothing until I had a Big Attack, which for me is: tremors, balance problems, vision problems, anxiety, speech problems, suddenly shivering, suddenly peeling off clothing layers, memory disfunction (remember names, words, lousy vocabulary, etc) illegible writing...I guess that's it.
Since that presentation in front of my current Movement Disorder Neurologist, I've been sent to a neuropsychologist or neuropsychologist, speech evaluator, cognitive psychologist, and rheumatologist. Each one of them will get the whole list plus the list of doctors plus the list of meds, plus allergies and naturally explain my current everything, or things that pop up and disappear. And hopefully each of those specialists will treat their specific, single PD problem.
As you see, there's no point in describing the whole ball of wax unless each/anyone asks for it.
I keep a running list of questions for each, no jokes unless they start joking, have my refill requests if any. I've no dark glasses on: this is the Only way I can help myself, and I have to accept that each doc has an appointment time limit, but I might insult them by talking past the limit to squeeze in everything. This is what I expect from all.