Predict Breast Tool Online

Posted by briarrose @briarrose, Oct 28 6:58am

I would like to share with everyone the following - if someone knows any further information re: this issue or this is the wrong information, please post (correct with accurate info).
I did the Predict Breast Tool online - https://breast.v3.predict.cam/tool as many of you did.
I am on an AI only - post mastectomy treatment.
I plugged in all my numbers as directed.
It was surprising to see my chances of survival with the AI and without the AI for 5, 10 and 15 years.
Basically the %'s were all the same!
However, I then read a bit further about this tool. IF you had a bilateral mastectomy (as I had) it does NOT apply. The tool is (apparently) used for breast cancer in only one breast, not two as I had. If anyone sees this as the wrong information or has further thoughts on using this tool, please share!
We always need the "correct" information as we fight our battle.
Thank you Warriors!

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Hi All,
I just wanted to update after my appointment with my new oncologist. She is fantastic, so happy. We talked about my concerns taking Letrozole. She suggested using the Predict tool before I even said anything(so different from my previous oncologist) we decided that at 79 going on 80 and other health issues an only a 2% dncrease is just not worth it. So no to taking a drug with all the side effects and yes to finally finding a doctor that will listen. It's not one size fits all. I pray that all of you achieve good health and healing on this journey. God bless!

REPLY

Wonderful news keywestsj!
You are so right, one size does not fit all and so glad you are happy with your new oncologist!
Sounds like a perfect plan for you.
Blessings to you as well as you travel your life journey 🙂

REPLY
Profile picture for keywestsj @keywestsj

Hi All,
I just wanted to update after my appointment with my new oncologist. She is fantastic, so happy. We talked about my concerns taking Letrozole. She suggested using the Predict tool before I even said anything(so different from my previous oncologist) we decided that at 79 going on 80 and other health issues an only a 2% dncrease is just not worth it. So no to taking a drug with all the side effects and yes to finally finding a doctor that will listen. It's not one size fits all. I pray that all of you achieve good health and healing on this journey. God bless!

Jump to this post

@keywestsj Congrats on finding an oncologist who will treat you (or not!!) based on your own research and sound medical studies. I haven’t found that doctor yet in Philly! So I have adopted my firm stance of having no treatments. Who needs a new boob at 79? Not me!
My docs (plural) haven’t been able to even ballpark my life expectancy IF I take Rx after mastectomy. I checked the probable life expectancy of a white woman born in 1946. The answer amazed me: 79.7 years. When I die --whenever that happens— it will be of something…breast cancer, car accident, heart attack, or just old age. I’ve lived a good life on the whole. And it sounds like YOU HAVE TOO. I’m THANKFUL that I read your post this Thanksgiving morning and will pray for you.
Let’s stay in contact, you and me. I support your decision 100%. 👏

REPLY

Good morning and happy Thanksgiving to you. So glad we have found each other. I'm praying that you find a Dr. that will treat you with respect. I agree with you about not needing boobs. I had a lumpectomy and if it returns I'll have a mastectomy. However I'm putting my faith in God's hands where it belongs anyway. I'm doing my last radiation treatment tomorrow, thank goodness that will be behind me. Yes, I've had a long blessed life. Looking forward to wonderful years without the side effects of drugs. Good luck on your journey. Thank you for your response.

REPLY
Profile picture for keywestsj @keywestsj

Good morning and happy Thanksgiving to you. So glad we have found each other. I'm praying that you find a Dr. that will treat you with respect. I agree with you about not needing boobs. I had a lumpectomy and if it returns I'll have a mastectomy. However I'm putting my faith in God's hands where it belongs anyway. I'm doing my last radiation treatment tomorrow, thank goodness that will be behind me. Yes, I've had a long blessed life. Looking forward to wonderful years without the side effects of drugs. Good luck on your journey. Thank you for your response.

Jump to this post

@keywestsj I had a stage 1a ILC lumpectomy last month & will start 5 day radiation on Monday. I'm also very torn about taking the drugs at my age, 72. It feels like an impossible choice, with unpleasant risks either way! I really appreciate hearing everyone's opinions & experiences. Wishing the best for us all on this day of gratitude!

REPLY

Hi All and I hope all of you are having a wonderful Thanksgiving with friends and family. I'm so thankful for all that God has blessed me with this day. I'm going to stop seeing myself as having BC or a BC survivor. My surgery was successful and I no longer have it in my body. I don't have it, I don't own it anymore. Enjoy every day and try to have a positive outlook. It really helps me. All of you have helped me by your posts and words of encouragement.

REPLY
Profile picture for prarysky @prarysky

Thank you for pointing out that the Predict Breast Tool has some restrictions about who can use it. The Test Overview suggests they are constantly refining the test. Since I was diagnosed with invasive ductal carcinoma in one breast, DCIS in the other, and had a double mastectomy, it seems the Predict Tool would not be useful to me since my diagnosis of bilateral breast cancer disqualifies me.

I mentioned the Predict Tool to my oncologist and she was somewhat dismissive of its value. I don't agree because I think reputable tools can help patients choose treatment options, if they want additional input.

Jump to this post

@prarysky Hi, I did " Predict" too. I had one side mastectomy. To my surprise, the 5, 10, 15 years survival rate are the same. Only 1%-2% the benefit when we take the AIs. We have to rethink if that is worthy the suffering with all the side effects. I am very disappointed with the out come. The test was sponsored by Pfizer and researched by Cambridge University.

REPLY
Profile picture for songfamily2025 @songfamily2025

@prarysky Hi, I did " Predict" too. I had one side mastectomy. To my surprise, the 5, 10, 15 years survival rate are the same. Only 1%-2% the benefit when we take the AIs. We have to rethink if that is worthy the suffering with all the side effects. I am very disappointed with the out come. The test was sponsored by Pfizer and researched by Cambridge University.

Jump to this post

@songfamily2025
I'm happy to hear the Predict tool provided some insight into your possible recurrence rates with or without AI. When these tools can be used, we can add their finding to discussion with our doctor(s). Unfortunately, my own oncologist was rather dismissive of the Predict tool when I showed it to her but since I wasn't a candidate who could use it, I didn't argue with her.

But if I remember, when I see my oncology PA, I'm going to ask her what she thinks. Surely, oncology teams know that many patients are sharing information about these tools. You'd think they'd want to be prepared to address them one way or the other.

REPLY
Profile picture for jmab @jmab

@keywestsj I had a stage 1a ILC lumpectomy last month & will start 5 day radiation on Monday. I'm also very torn about taking the drugs at my age, 72. It feels like an impossible choice, with unpleasant risks either way! I really appreciate hearing everyone's opinions & experiences. Wishing the best for us all on this day of gratitude!

Jump to this post

@jmab I am not taking endocrine drugs (aromatase inhibitors). I am 78, and my Oncoscore was very favorable as to not having a recurrence, and I did that other test that they have on the Internet. To each is own. We have to live with our decisions. I am a caregiver for a husband with endstage kidney disease. We do home hemodialysis. I cannot have brain fog, tiredness, nausea or the other gastro-intestinal side effects.

REPLY
Profile picture for pacentro @pacentro

@jmab I am not taking endocrine drugs (aromatase inhibitors). I am 78, and my Oncoscore was very favorable as to not having a recurrence, and I did that other test that they have on the Internet. To each is own. We have to live with our decisions. I am a caregiver for a husband with endstage kidney disease. We do home hemodialysis. I cannot have brain fog, tiredness, nausea or the other gastro-intestinal side effects.

Jump to this post

@pacentro I completely understand & I think you're right not to tax yourself with heavy-duty meds at this point in your life, when all of your signs are favorable for a full recovery. I think I will start with 5 mgs of Tamoxifen & if it's ok, work up to 10 mgs. I can imagine my oncologist's face when I tell him that at my appt this week! He won't be happy. But it's all such a personal journey & as you say, not 1 size fits all. I appreciate your thoughts & I wish you & your husband all the best! Thanks for weighing in.

REPLY
Please sign in or register to post a reply.