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Has anyone experienced repeated infections while taking SKYRIZI
Autoimmune Diseases | Last Active: Dec 12 6:42am | Replies (51)Comment receiving replies
I was on skyrizi , switched from cimzia because it got approved for Crohn's and Skin problems, so I switched, but I was having pain in my left hip before starting that got so much worse after the initial starting dose that I stopped, ended up having hip surgery!
It's been my experience that they will put you on several immunocompromised medications at the same time, you have to really be your own advocate with this! Staying away from situations where you are compromised, around sick people, start wearing a mask 😷 it's vital!
Research everything, preferably before you start anything new and have notes with specific questions prepared for your visit it's key, do not allow NO info as an answer!
As far as Vaccines go, you can not ever have a live vaccine,but artificial are usually OK!
I hope this helps, wishing you good luck!
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@bbmayo Thank you so much for your thoughtful, caring, and detailed response! I love your spicy, “don’t take no for an answer!” Well said!
I hope you are doing well after your hip surgery. What an unpleasant way to find out you needed it to begin with. Do you mind if I ask…did you go back on SKYRIZI after your procedure?
I mask everywhere I go, and just bought a box of 3M aura masks. I wash my hands constantly, and am doing my holiday shopping online or first thing in the morning. I’m skipping two holiday parties this year because friends are traveling all over the place, and I know they don’t take any precautions whatsoever. So I’ll FaceTime in. It won’t be the same, but I’ll still get to participate a little bit.
As for being my own advocate…my goodness, it’s an exhausting full-time job, isn’t it? And it’s so funny you suggest going in with notes; I had an entire list of questions in a notebook when I last saw my doctor.
A lot of my anger and frustration stems from the fact that when I do ask questions like, at what point in the treatment should I get a vaccine, when should I safely visit the dentist, etc, the answers I get are so VAGUE. “Wait a couple of days,” “a few days is fine,” and my favorite from the fine folks at AbbVie…” oh, I’m sorry, I don’t have that information.”
I need a team of doctors to tell me bits and pieces about one drug that the one doctor who has prescribed it can’t answer. 🤦🏻♀️
I wouldn’t mind SKYRIZI if I didn’t have weird “rogue” fevers and inflammation popping up in other parts of my body.
Let’s all stay safe and healthy this winter season! ❄️