← Return to Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?

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Profile picture for oashir @oashir

I was diagnosed with MZL in 2016 as a result of blood tests that showed an elevated protein and a CT scan revealing a slightly enlarged spleen. Subsequent testing and a bone marrow biopsy confirmed the diagnosis. The result was watchful waiting. There were no changes till 2024 when my hemoglobin dropped to dangerous levels. I was then diagnosed with Waldenstrom Macroglobulinemia. Treatments were Bendamustine (chemo) twice a month on back to back days for six months and Rituximab (immunotherapy) once a month for six months. Everything went well till I contracted PCP pneumonia in the middle of my monthly treatments. Six months after completing treatments I am about 80% back to normal. WBC and RBC levels are still low but hemoglobin is back in normal range.

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Replies to "I was diagnosed with MZL in 2016 as a result of blood tests that showed an..."

Hi @oashir, I’d like to officially welcome you to Connect, though I see by your profile that you’ve been a member since July. I’m so glad you popped into the discussion and shared your experience with MZL. Everyone has such a unique story with their blood cancers.
It sounds like you did really well with the treatments until you developed PCP pneumonia. That had to be a frightening and discouraging experience. Did it take quite a while to recover from the pneumonia? Mid month, between cycles is when we’re usually at our most vulnerable with neutrophil levels low. I’m sorry to hear that you’re not quite back to normal with all the blood work. Hopefully that will even itself out over time.
Are you off all treatments now?