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@scoop
Lower RI after dental or on Brinsupri is common? Many here have noticed side effects or benefits from Brinsupri far before the 3 to 6 months. I do not think they are imagining them. To me it seems the drug has alot more side effects than we had anticipated.
Replies to "@scoop Lower RI after dental or on Brinsupri is common? Many here have noticed side effects..."
@irenea8 To clarify, LRI after dental work isn’t unusual for those of us with lung disease. I’m not sure how Brinsupri might influence that.
As for side effects, I really hope everyone taking Brinsupri continues to share their own experiences. The comment that it has “a lot more side effects than anticipated” felt a bit vague to me. Are you currently on it, and have you experienced side effects yourself? I hope it helps you far more than it harms. For now, it’s the only FDA-approved option we have for this disease. So far, it has helped me more than harmed me, but it's still early.
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@irenea8 "To me it seems the drug has alot more side effects than we had anticipated." That's why I have been sitting on the sidelines listening. There is a big difference between clinical trials on a carefully curated population and prescribing to the population as a whole, with different severities of disease, many other health issues, sensitivities, and medications. I always think of a new drug release as Testing - Phase 4.