Pain in legs with PMR

@ropnrose how do you know it’s from the statin and not PMR? Can they mimic each other? Maybe taking a statin with PMR makes the pain worse? I have PMR and also take Simvastatin. My Doc says there’s no connection, but I’m not so sure.

@aflik I don't have answers to your questions. I have not had a discussion with my doc regarding the statin and PMR. Since Prednisone and Actemra can increase cholesterol, I never considered eliminating it. I'm happy that I am relatively pain free. I have some minor hip and knee pain, but I'm 69 yo. I've finally been able to increase my activity level this summer.

There is a previous post related to Vitamin D deficiency. After checking vitamin D level, I additional vitamin D and the leg pain reduced to almost nothing. Try an internet search for NIH PMC12430293. There is a PubMed Central article on the study, "Vitamin D Status and Response to Supplementation as Predictive Factors for Early Remission in Polymyalgia Rheumatica".

On leg pain: one of my first symptoms was pain in the quadriceps, along with unnatural hip movement. (Other muscles and joints followed, and thankfully I seem to be tapering prednisone successfully for the moment.) And on the association with other drugs, I cannot tolerate omeprazole: extreme pain in the thighs.

I've had pain from hips to my knees (mostly hamstrings) but I always see shoulder and hip qhen i searched symptoms. Not much mention about legs. I have no spinal issues, and this all started at the same time, so I'm certain its the PMR

You could be right, especially if its your thigh area and your hips. Standing up or sitting down is very difficult. Just finished an episode of that type of pain, and its PMR, blood test confirmed . You could have shoulder and neck pain, or pain in the hip and thigh area.
Good luck, just stay hopeful that some doctor somewhere will find a cure.

My initial pain was in the back of my thighs when going upstairs. I also had morning pain in my shoulders. Then I was diagnosed with PMR and the symptoms were in line with other people with PMR. I have been on prednisone since March and have tapered to 3mg. It works most of the time but as I increased my exercising I feel some discomfort. I don't want to increase prednisone. My shoulders are stiff and sore in the morning but using resistance bands to stretch them out is a big help. I do other exercising later in the day but the bands really help and there is no pain using them. They just feel good.

@subway ,

Thanks so much for your comments. I'm down to 4mg now but it wasn't easy. Can't wait to get to 3mg. While I still have the PMR I can already see better results on my body since getting under 5mg. I wish you the best in getting over this dreadful decease quickly.

Tom

@tomek456 Hi,

Normally golf, walk the dog, do yoga, dance in a show choir and jump up from bed! Just diagnosed and wondering if I had a virus prior to the pain and stiffness starting. We were in Portugal on a bus tour and my husband developed a cold and cough. There were a few others with coughs, so not sure what virus as no one tested for Covid. I was fine, but when I got home, I noticed pain and stiffness in my anterior and posterior hip muscles and thought it was from the trip as I had to push and pull both suitcases. ( my husband was using a walker). However, the pain/stiffness continued and my CRP was 40. I wonder if I also had the virus with no symptoms and the PMR then started from that. My Family Physician in Calgary was able to contact a rheumatologist right away and he diagnosed PMR. Luckily, I will be seeing him in January. I am on 15 mg of Prednisone and note that my symptoms still fluctuate. Yesterday, I was great and today, not so much. LOL