Anyone with polycystic kidney disease post transplant?

Posted by family1998love @family1998love, Nov 13, 2025

Someone around here with ADPKD?

Interested in more discussions like this? Go to the Transplants Support Group.

Welcome, @family1998love. There are several members here with polycystic kidney disease (PKD) who have had successful transplants like, @elevinton @jolinda @kayb @stephanierp @jennifer0726 @kidneybean1 who can share their experiences.

Here are some related PKD discussions: https://connect.mayoclinic.org/group/transplants/

@family1998love, have you received your transplant or are you waiting for a transplant? How are you doing?

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Hello,
Welcome! Yes, I have PKD and had a successful kidney transplant 5 years ago.

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Yes: 27.4 cm. (x2) kids.
No transplant wanted.
MHD x 9 mos.
Wishing HALN removal of twins ASAP. So far: No surgeons willing to take insurance $$ for my benefit.

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