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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @cmercer50 So glad you jumped into the ET discussion. Being able to connect with other members who have the same health diagnosis can broaden the scope of knowledge with all the shared stories. Whether your doctor refers to your essential thrombocythemia as a blood cancer or blood disorder, it still needs to be taken seriously because it indicates a change in the health of your bone marrow in producing healthy cells.
As you can see, you’re not alone with taking HU for your ET. It’s a mainline treatment for patients with myeloproliferative disorders such as ET, PV and myelofibrosis. It’s great to read you’re having no side effects and thank you for sharing that! Sharing positive feedback can definitely help allay some fear others may have about taking the drug. Sometimes our bodies need a little help with doing their job. ☺️

When you were diagnosed had you been having symptoms that lead to the discovery of ET or was this found through routine physical?

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Replies to "Hi @cmercer50 So glad you jumped into the ET discussion. Being able to connect with other..."

@loribmt Thanks for your response. I was diagnosed with ET through routine labs that showed high platelet count. I had no other symptoms. I was referred to an oncologist who ordered the genetic test that found the JAK2 mutation. I was already taking a blood thinner for recently diagnosed a-fib, so I don’t take aspirin. I asked my doctor about taking low-dose aspirin as well as Eliquis since they work in different ways, but he said it wasn’t necessary. I’m still curious about that.

@loribmt
ET was discovered through an al physical. I had had no symptom and was shocked with the confirmed diagnosis using a bone marrow biopsy.
I am blessed that the baby aspirin and daily 500 mg of hydroxyurea has produced no negative side effects, but it has reduced my platelet numbers over the last two months.