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← Return to AREDS 2 - Does it help?
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@eyak1950
You have had a rough time, follow through with your no zinc AREDS if your retina doctor agrees. Ask your kidney Doctor about your immune suppressing med, make sure you are taking the right dosage. Report all med side effects to them.
The information on AREDS and AREDS2 comes from the NIH-sponsored clinical trials (AREDS 2001 and AREDS2 2013). In both studies, the only consistent side effects were gastrointestinal, mostly related to the high zinc dose. No cancer or systemic illness signal has appeared in the data or follow-up reviews.
If anyone wants official guidance, the National Eye Institute (NEI) at NIH can be contacted for AREDS/AREDS2 information. Patients can also report personal reactions to the FDA’s MedWatch program, and ophthalmologists often follow guidance from the American Academy of Ophthalmology (AAO).
For educational support about AREDS and macular degeneration, the Brighthouse Foundation online (formerly Macular Degeneration Foundation) answers patient questions and summarizes AMD research in plain language. I've emailed them in the past with questions and they responded.
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@sjs1 will follow up on your suggested contacts. Have contacted aaoc before for an incompetent doctor but with some professional agencies they often concentrate on protecting their. As a teacher oi have seem that happen time and again. So it's with many professional communities and organizations that depend on outside monetary support from the professionals or businesses they are supposed to regulate. In government it happens consistently. Bit sometimes you contact one that has a sense of right and wrong. I aways give it a try in hopes I will contact one of them.