← Return to Anyone here with HCM that also has osteoporosis?
DiscussionAnyone here with HCM that also has osteoporosis?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Jan 5 9:03am | Replies (6)Comment receiving replies
Replies to "Hello Fellow (alumni) Mentor! @cynaburst, it's good to see you here. I remember when I first..."
Connect

@karukgirl Thanks for your kind words.
Yes, I have spoken with my Mayo HCM doc and another HCM expert I know. Both seem to think it is worth trying. Tymlos can cause tachycardia and a drop in blood pressure so I am nervous, but I have also been reading people's experiences here on MCC in the osteoporosis section and they have given me some good feedback such as you can start on a lower dose and increase to see how you react.
I have had 4 fractures since 2020 and I keep falling down, so i am super nervous about breaking something worse. This last fracture was a doozy. I couldn't move my arm at all afterward and was in this horrible plastic brace for 3 weeks until they decided to do surgery. My whole arm and hand turned black and swelled like a balloon.
I am inclined to probably try and see how it goes. I don't want to have another accident. But would love to hear from anyone else who has similar experience.