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nohrt4me (Jean) avatar

High LDH with ET?

Blood Cancers & Disorders | Last Active: 4 days ago | Replies (44)

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Profile picture for 1pearl @1pearl

Hi @nohrt4me,
I sense and feel your frustration my CALR friend. I am blessed to still have no symptoms from whatever I have with my high platelets. I still choose just to take low dose aspirin for my high platelets. You definitely are not stupid. Honestly, I think you were wise not to get too concerned with labs earlier as mine fluctuate greatly as do my emotions. But if I had any symptoms, I might feel differently. Right now, I am just trying to figure out what Medicare Advantage Plan in my area might be better for me to try as I am very frustrated with what I chose my first time doing this once 65. Yesterday, I got a call from them saying that I could finally be scheduled with the hand surgeon to remote the “mass” in my right finger. Before they blew it off as an old injury and no big deal and no “mass”. I really want a new and different group to give me another opinion on what my finger issue is so I declined scheduling my “mass” removal with my current Advantage HMO. I still feel great and do not feel I need to change to a regular Advantage Plan with a Supplement. I have no pain anywhere, even my enlarged finger joint, and my usual tons of energy each morning. I just do not believe I am a sick person and I really am thankful I do not feel that way. Please remember the neuroplasticity of our brains and what we can achieve by knowing that. My daughter taught me that from her current psychology class. I know I am blessed to be busy helping her and myself learn lots of new ideas so I really do not have time to concern myself with possible unknowns of my health. Stay positive!
Happy Thanksgiving!

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Replies to "Hi @nohrt4me, I sense and feel your frustration my CALR friend. I am blessed to still..."

@1pearl Will have to go look up "neuroplasticity." Good luck with your Medicare shopping. We are on a new plan as of 2026, so trying to get these tests scheduled before the end of the year. As for positivity, that's harder to muster when you don't feel good.

Happy Thanksgiving to everyone here! I am thankful no tree branches came down in the high wind yesterday. Enjoying a nice cup of the "good" coffee this morning and hoping this dippy cat on my lap purrs away some of the brain fog and nausea. She is not too bright, but she has good vibrations.