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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Jul 18 8:22am | Replies (622)Comment receiving replies
I am and I am glad to have found this group. I'm a 59 year old female newly diagnosed with ET and JAK2 positive. I am trying to learn all I can about it. I am also thinking of getting a second opinion.
Have most people had second opinions? UCSF (San Francisco) has a great reputation and has a second opinion division of their medical center.
Looking forward to reading all these comments!
Thanks everyone for sharing!
Replies to "I am and I am glad to have found this group. I'm a 59 year old..."
@alisam
A diagnose of ET is confirmed by a bone marrow test.
Thus, a second opinion seems unnecessary. Plus UCSF is considered an excellent facility.
Do what you need to do to feel comfortable. I did not have a second opinion. My bone marrow test confirmed what Had already been diagnosed.
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@alisam
So sorry for your diagnosis, alisam. But -- welcome!
Living in a remote part of Virginia, with few medical resources, I haven't sought a second opinion.
It's essential to understand what's going on, though, so you can make the best treatment decisions. A good care team makes all the difference.
Hope someone from CA will chime in about UCSF.