Collagenous Gastritis

Posted by e @epvb, Mar 27, 2017

I was recently diagnosed with collagenous gastritis which is very rare. I'm looking for anyone else who has similar diagnosis.

Interested in more discussions like this? Go to the Digestive Health Support Group.

kellye5 | @kellye5 | Jan 26, 2018

Hi. I never received a pm. Just don'twant to miss any information. Thanks.

Mindi | @mindi | Jan 26, 2018

In reply to @kellye5 "Hi. I never received a pm. Just don'twant to miss any information. Thanks." + (show)

kellye5 I’m not sure what you referring to bout “never received pm”. If it was referring to my previous post bout Budesonide and thanking epvb for information it was to the post published January 17th.

I too do not want to miss any information as there is little out there with virtually no interest from scientific/medical world.

kellye5 | @kellye5 | Jan 27, 2018

In reply to @kellye5 "Hi. I never received a pm. Just don'twant to miss any information. Thanks." + (show)

One of the members had asked to pm me. I received it. We will be travelling there soon. Thanks.

kellye5 | @kellye5 | Jan 27, 2018

Does anyone have a favorite hotel connected to Mayo MN that is reasonable for a week?

Colleen Young, Connect Director | @colleenyoung | Jan 27, 2018

In reply to @kellye5 "Does anyone have a favorite hotel connected to Mayo MN that is reasonable for a week?" + (show)

Hi Kelly, You'll find some great recommendations about hotels in Rochester, MN in this discussion in the Visiting Mayo Clinic group:
- What are your accommodation recommendations when coming to Mayo? https://connect.mayoclinic.org/discussion/what-are-your-accommodation-recommendations-when-coming-to-mayo/

kellye5 | @kellye5 | Feb 6, 2018

Hey y'all. We are about 20 days out from our week or so stay at Mayo MN. I am so frustrated as I have called every week since getting accepted and an appointment to see if our records have gotten there and nothing until today...one set if records from our GI. I am now told the slides must be asked for from the pathologist...we had NO idea. Medical records is what we were told and they told us they would handle it. Where is the Mayo 101? I feel like an idiot and no the reason our docs here are not getting the records to Mayo is because they are losing a patient...they are delighted because NO ONE on the East Coast has heard of CG!! I felt like I was just a bother....and perhaps I was. Maybe I am supposed to know all of this....anything else I need to know? I have received nothing. No app. time or place. Is there a shuttle at Rochester International airport? I am just a mom from SC trying to get my kid help in MN...with No guidance. I have read maps and other's stories but I am anxious.

John, Volunteer Mentor | @johnbishop | Feb 6, 2018

In reply to @kellye5 "Hey y'all. We are about 20 days out from our week or so stay at Mayo..." + (show)

Hi @kellye5 - Sorry you are having problems with the medical records. Here are some links that I think will help you get around. The Rochester Airport does have a shuttle service. Mayo Clinic Concierge Services may also be a good start for any last minute questions. There is a phone number and email address on their page.

Rochester Mayo Clinic Concierge Services
https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services
MAYO CLINIC TOURS - YOUTUBE VIDEOS
Mayo Building - Mayo Clinic Patient Video Guide - Minnesota - YouTube

Rochester, MN Airport Shuttle:
https://goairportshuttle.com/rochester_rst_airport_shuttle
Traveling by air to Mayo Clinic's campus in Minnesota:
https://www.mayoclinic.org/patient-visitor-guide/minnesota/travel-lodging-maps/by-air
Hope this helps. Also, make sure you bring a warm coat.

John

kellye5 | @kellye5 | Feb 6, 2018

@johnbishop Thank you. I know I am beginning to panic. We have purchased real winter weather clothing as SC has no real cold compared to MN...the cold actually scares me!
I will research all of these sites tomorrow. I truly appreciate your time.

John, Volunteer Mentor | @johnbishop | Feb 6, 2018

@kellye5 not too worry about the cold. We’re getting a heat wave next week - mid 20s. Once at the clinic you can get around through subways or skyway links between buildings.