Im in a similar position. I solve my problems better than the Drs but its hard to get them to listen. I had a SCS, now removed but my health has nose dived since that awful device.
My pain levels are excruciating and my meds no longer helping. Where to turn next ....living soo hard but I refuse to give up.
I think I have centralized nerve syndrome...its debilitating/ pain so debilitating.
Wishing us both luck 🙏