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zinnia55 avatar

Oral Lichen Planus, how are you coping?

Autoimmune Diseases | Last Active: Dec 24, 2025 | Replies (19)

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Profile picture for suecutuli @suecutuli

This is so hard. My stress is way lower so I was hoping for remission. I swab my mouth at night with clobetasol. It works the best. I also saw someone posted using a red light. I have been using that for 2 weeks. I have some improvement, but not sure what to attribute it to!
If the person that posted the red light remedy could jump in and give me more specifics about their treatment i would appreciate it. I can’t eat any spice! I am pulling myself up and accepting this but it really sucks. My ENT just basically said the same thing! “ do whatever works, I’m sorry, this is a tough one with no answer “ I appreciate the empathy but a remedy would have been more helpful!

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Replies to "This is so hard. My stress is way lower so I was hoping for remission. I..."

@suecutuli Hey I appreciate your honesty with the situation. I am freaked out most of the time because of this disease. I am trying to figure out the triggers and keeping a journal but like you said stress is a problem. I have my next appointment on the 2nd I will ask about red light and clobetasol. If I have anything new I will share it here. Thank you for your responses!