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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Jul 18 8:22am | Replies (622)Comment receiving replies
@lea123.
I also was told ET JAK2 on first diagnosis in 2023. But after 2 years on aspirin only and all blood counts slowly increasing, my diagnosis was changed to PV. Started HU 500mg daily in June 2025 and all counts are slowly decreasing.
I'm also in Maryland and have seen 3 different hema/oncologist.
Are you near Gaithersburg. Rockville or Bethesda area?
Replies to "@lea123. I also was told ET JAK2 on first diagnosis in 2023. But after 2 years..."
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@mw2023 I am in Gaithersburg, but all of those places are close.