My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Posted by Lori, Volunteer Mentor @loribmt, Feb 14, 2021

The past two years have been a storied journey of facing Acute Myeloid Leukemia and a subsequent bone marrow transplant. Being in a high risk category for relapse for AML, a transplant was necessary. Simply put, it would provide a completely new immune system to fend off any remaining AML cells lurking about in my body, after my original factory installed version had become defective in recognizing them. My husband and I shared a collective sigh of relief with the news that my latest bone marrow biopsy, at 19 months post transplant, showed no AML or the mutation which caused it. My new immune system is working!
While celebrating the results with my husband and a pizza, it occurred to me how far I’ve come and how life has changed in the past two years since the onset of AML and the transplant. There have been some challenging transitions but none insurmountable. Of course, life as a genetically modified organism, with two sets of DNA and a new blood type, can have its turf wars with a few GvHD issues, adaptations to medications and such. But I’m incredibly happy to have a second chance with this generous gift of life from an anonymous donor, and through the medical expertise of my amazing BMT-team at Mayo-Rochester. Hopefully I can meet my donor someday to thank him in person. I did send him a card right after the transplant giving him my “undying” gratitude!
We’ve all been given a gift of life. I’d love to hear your story. Lori

What diagnosis brought you to a BMT?

How has it impacted your life and that of your caregiver?

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

Profile picture for anitasharma @anitasharma

Hey @loribmt I have a question to ask for more suggestion and help regarding my husbands health .
its been 6 months now after BMT Transplant for disease Acute Lymphoblastic Leukemia .By God Grace he is doing fine ,this week he was having a fever cough and Cold and Doctors done a swab test along with Chest X-Ray. The result comes with Covid Positive .What are the precautionary things can be taken at home Also to avoid any food or anything else ??? We are more cautious for sanitization and masking , other than that what should be avoided or to keep in mind . Also Does it takes 10 days or more to recover from Covid and the symptoms . Doctors are going to start more antibiotics now onwards. Good thing is he does not have Pneumonia this time . anyways looking for more response ....
Thanks to all for reading and responding .
Keep healthy and happy always .....

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@anitasharma Just being nosy this morning. ☺️ How’s your husband coming along with his Covid? Is he recovering quickly?

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Profile picture for Lori, Volunteer Mentor @loribmt

@anitasharma Just being nosy this morning. ☺️ How’s your husband coming along with his Covid? Is he recovering quickly?

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@loribmt
Good morning the lady with beautiful heart❤️
My husband is doing absolutely fine . Thanks so much for asking and remembering us.
"I'm so grateful for your support," "Thank you for your time and effort," and "I can't thank you enough for your help; you've made a real difference".
He has no signs of Covid anymore in his body now , but precautionary We are keeping him on resting mode safely inside the house for few more days . His other tests are also looking good , its just that his Hemoglobin is not showing going up and also his weight seems just stuck with 68 kg. Is There anything his weight can be increased ????His appearance overall is better and I am hoping it might goes well now onwards . My In-laws are here till January mid ,they are playing a good role here in his Sons recovery. I am so grateful to God for giving his another life . My Son will be going University next year preparing for another big change in Life . Overall going smooth , Life is having ups and down but We need to go get up every time whenever its low . Life is beautiful I pray to God everyone lives a good life .
You have always been my biggest cheerleaders. Thanks for your Support @loribmt
May God shower happiness and beautiful life ahead.

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