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The Caregivers' Guilt Dumpster - Open for business

Caregivers | Last Active: 2 days ago | Replies (376)

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Profile picture for labrown @labrown

@cnutt I keep a journal of anything out of the way good and bad that goes on with my hubby, that way when we go to his neurologist, which we do every six months, I can give him a run down of how things have been going. If things have been especially bad, like they were over the summer when he was having so many delusional episodes of people trying to kill him and he had so much fear going on, then I will reach out to him by either calling his nurse or going through the portal and the doctor will make necesssry medicine adjustments. I also talk with our family doctor at appointment times throughout the year to keep him abreast of my husband’s progress. The doctors understand that your husband is going through change in his journey…to them it’s “normal” progression. I don’t call my adult kids daily to tell them every crazy sounding thing their dad is doing (continuously resorting through his belongings and hiding everything he has that he feels someone is wanting to steal), but I do let them know when it’s something major (like his going up to the neighbors and asking them to call for help because someone is out to get him). You will learn with time. At first everything is so alarming, but as you become more use to his behavior you will find it takes a lot more to alarm you. I hope this helps you.

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Replies to "@cnutt I keep a journal of anything out of the way good and bad that goes..."

@labrown yes helps immensely thank you. We video visit with neuro every couple of months, she doesn’t ask what he does and I don’t say. Will speak up more next time.

@labrown My course of action is the exact same as yours. We've tried all the "normal" medications prescribed by all her MDs but the best so far is the CBDs
Keep up the good work!