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Does anyone have multiple diagnosed illnesses besides P/D? I have 5+
Parkinson's Disease | Last Active: Dec 9, 2025 | Replies (43)Comment receiving replies
@jflamini , good grief. I have enough of a hard time getting out of bed, letting my dog outside & back, walking 4 steps up to my brother's kitchen and back down...that's about it for exercise! Where do you get all the energy??? When I try to PUSH myself, I stress, which BANG!!! turns on every symptom in the book. I just stress too much I guess, but I don't know how to avoid this trigger. Five to seven days ? I spend 5 to 7 days sorting thru my to-do list, making/breaking/rescheduling doctor stuff (*Cardiologist. ENT, GI, Psychologist, Psychiatrist, Seizure doc, P/D doc/Gen Neurology doc, Pain doc, and a few more...one for each symptom of pd, one or more for the other crud. i just can't find the time except for the absolutely necessary naps.
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@bruizersmom
I know it is hard. But my husband’s movement doctor (part of a Parkinson’s Foundation of Excellence unit at Chapel Hill, NC) agreed that moving to a 100+ year old building with 26 steps to our apartment was good. After a bad illness (rhabdomyolysis was the result), he is up and down those steps multiple times each day. Even walks around the block! I’m glad I pushed for the move!
@bruizersmom I agree, it's a lot so start small. Sounds like yoga would be a good starting point. Nothing crazy, just breathing and gentle movements. Chair yoga can be an excellent opportunity for some stretching. You may find a zoom class online. Start slow with walking for just a few minutes and increase from there. The point is you must keep moving to use it or lose it. Muscle mass is important to maintain your balance. After a little exercise I earn my nap time which I take almost every day around noon.
The yoga including slow breathing may help calm the stress and some of the pain. My wife's favorite quote related to PD.....It's not about waiting for the storm to pass, it's about learning to dance in the rain.
Try one small step and don't give up. The journey of a thousand miles begins with a single step.
Please let me know if I can answer any questions, Joe
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@bruizersmom I’m in Philly with several large hospitals nearby. While we have many docs in Center City, the problem is GETTING an appt.
First visits to see specialists take 6 months so you play the game calling each hospital to book the earliest available appt with Anyone in the specialty you need. Waiting lists for cancellations are hit or miss. Mostly miss.
Does anyone else have problems getting new Doctor appts?