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Traveling with Alzheimers spouse: Is confusion expected?

Caregivers: Dementia | Last Active: Nov 27 7:33am | Replies (14)
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@mm180
I completely relate to your issues. My wife has Lewy Body and is generally apathetic about traveling anywhere. But we still travel up to 4 hours to see friends and I have put her in a diaper a couple of times to avoid any accidents on the road. She finds it embarrassing even though you wouldn't know she had it on. But it still effects her mood and happiness.
She can't use the toilet by herself and I have started a list of places we can stop for restrooms where I can accompany her in to assist. Problem is in the South there aren't any family restrooms on the road. I've started just taking her into the men's room with me. That can get you some funny looks and it's not always going to be a one holer when we stop. The restroom issues is one of our biggest obstacles to our traveling.
How do you handle these situations?

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Replies to "@mm180 I completely relate to your issues. My wife has Lewy Body and is generally apathetic..."
Scott, Volunteer Mentor | @IndianaScott | Nov 24 12:19pm

@mike862 I'm Scott, and I know every patient and their situation is different. Here's an option of what we did. In my wife's case, I explained to our family and friends that, for her well-being, it would be necessary for them to make the trip to see us, rather than my wife and me traveling to see them.

Those who couldn't do that, we used FaceTime, etc., for our visits.

As I said, just what worked for us.

Strength, Courage, & Peace

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mm180 | @mm180 | Nov 27 7:33am

@mike862
I haven’t had to start going into the restroom with him yet, but I don’t think that is far off for us. It sounds like you have hit upon the best solution and if you get any strange looks I would just quietly say, “my wife needs my help” and most folks will likely be understanding.
Staying home is definitely the easiest option from a logistical standpoint. Having friends visit at your home instead of traveling to them might be a good option?

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