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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 2 days ago | Replies (281)Comment receiving replies
I've had ET Jak2 since 2020, with HU and baby aspirin. I know I'm not supposed to take any NSAIDs for arthritis pain, but tylenol doesn't relieve the pain. Does anyone use a good pain reliever medication that's not a NSAID?
Replies to "I've had ET Jak2 since 2020, with HU and baby aspirin. I know I'm not supposed..."
@1995victoria I have JAK2/PV and take Hydroxyurea and low dose aspirin and I’ve taken 15mg of Mobic/meloxicam for at least 30 years. My hematologist and pharmacist were both aware of that when I was prescribed the HU. I’ve taken it for pain/arthritis in my back, shoulder and hip.
I have always been careful and always take it in the AM after breakfast. I take the HU late at night just before bed as recommended by my hematologist.
@1995victoria
I did not know you should not take Advils with hu
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@1995victoria
It's really important to bring this question to your own doctors. They are your safest source of advice.
That being said, have you ever tried topical sprays or ointment? I've been told by an oncology PA that lidocaine and menthol don't interfere with aspirin or HU.
Do study the ingredient list before using any topical product, as some do contain NSAIDs.
Also wondering if any kind of water exercise is possible for you? My joints are happiest when I'm swimming laps.