New alarming symptoms

You poor dear. Do you have low blood pressure? Lots of folks with fibromyalgia do including myself.

@lauriebee
What dosage are you taking and how did you increase? I’m taking a deal for about two months now but I’m very sensitive so I’m only at about 0.6 mg. I really would like to get up because it’s not helping my pain and yet I worry about side effects so I would like to know for fibromyalgia what and widespread pain what your sweet spot is thanks

Have you been tested for POTS? I was diagnosed after several ambulance rides to the ER after getting dizzy out of nowhere and passing out for 5-10 minutes at a time from blood pressure dropping while standing. My POTS was activated by the Covid virus and confirmed by my Cardiologist. It causes me dibilitating fatigue, dizziness, and fainting. Around that same time, I started having unexplained weight loss. I lost 90 pounds before they figured out I had Celiac Disease also activated by the Covid Virus. I have developed several other autoimmune and conditions including fibromyalgia. All which cause chronic pain and fatigue. Because of the covid virus activating all of these things, after nearly 5 years of this, I have a long covid/post covid syndrome diagnoses. You may have been tested for all of this already. But several things you mentioned in your post were similar to my symptoms. I hope you can get this figured out soon.

@ksblonde
Thank you so much for the information.
Good luck & take care.

I have only recently been diagnosed with fibromyalgia, I went through being potentially celiac and was on a gluten free diet for years. I have always had low iron, and was anemic at one point. I was losing my balance, fell over twice, in hospital twice but was on tablets for GORD and then antidepressants for my pain( before my fibromyalgia diagnosis interestingly.)
I still have balance issues but no way near as bad since cutting down my tablets and just taking them when desperate. Other issues might be going on, not every thing is fibromyalgia. After getting tests done while in hospital they found I have got a slipped disc, Radiculopathy and chronic neurogenic changes in my right vastus medialis so this also could contribute to other symptoms. My worst weird symptom is that I have a very good sense of smell , unfortunately the nasties can take my breath away, and I can feel sometimes what's going on inside my body ..When I turn my eyes from side to side I can feel my muscles working for example . It feels as if all my muscles have been jumped on and are bruised at the moment.

Hi All,

I had similar symptoms and found out that a lot of it was due to my neck being out. I would suggest a consultation with a Physiotherapist, it helps with Brain Fog and headaches as well.

I wish you all Good Health.

Oh and I have also found a doctor in my home town that has diagnosed me with Mast Cell Activation Syndrome, can be a comorbidity with Fibromyalgia.

I would definitely ask for that testing. It is currently due to the rebalancing of my gut flora and biome making a huge difference.

I still get all over daily pain but no where near as bad as before.

Try it out and you may be surprised.

Make sure they check for diabetes and insulin resistance. I also have all the things you have for various different reasons and some the same but the dizziness and balance problems ended up being resolved when I demanded some medicine for insulin resistance. They changed the scores for the A1c. I was always on the border on the correct side of the borderline in testing. I adjusted my diet for 17 years because of the insulin resistance diagnosis years ago. But what happened was the insulin resistance got to a point where I could no longer control it and my A1c, which was borderline at 5.6 was readjusted by the algorithms to be determined as outside of the borderline. So I demanded some medicine and it fixed 17 years of dizziness. I think what happened was I controlled my diet so well, but I got to the age where that wasn’t enough and because the doctors just used scores up on your labs and don’t look into everything else my borderline A1c was ignored. I can’t tell you how much better I feel now that I am on the metformin medicine!!! Years of dizziness and almost passing out and severe hunger pains at time where I shouldn’t have been hungry and cravings for something sweet are all gone. My body feels so much better. I have fibromyalgia. I never really know what it’s tied to exactly but I know I feel a lot better on gout, medicine and insulin resistance medicine. I feel a lot better at 68 than I felt at 38.

Has anyone been a sole Caregiver with Fibromyalgia? My husband is end stage cancer now of 3 1/2 yrs . They gave him 6 mos The Fibro pain & stress is almost unbearable. As I have depression and anxiety issues and treated, I am only able to take Gabapentin. The pain has worsened My husband not eating much. He is coherent, does not want hospice now, I am trying to take care of him and myself. I feel that I just want to go with him. We have been married over 50 years. I am 74. Maybe our time is up. Any Suggestions? I don't care if Holidays are upon us.
Hardly any family. Two adult sons are up north deer hunting. What is more Important?
A very Kind person from our church is having delivered a Thanksgiving meal to us. We are Grateful & Blessed
to have that. I am counting my Blessings there are worst things to have.

I am sorry that you're in this difficult situation.I am not a carer but my mum is caring for her mum who's 94. I can see how much she's struggling but I don't live nearby and we are relying on family who live nearby at the moment. I have fibromyalgia and when it's bad with stress , no time to rest I can just imagine your hardship. Thank goodness you have your church friends for support, I think this is a huge life line. I would talk to someone at church how you're feeling as it's sad to think that your time is up and being a Christian myself I always say to myself life is a gift and God has a plan for each and everyone of us and he calls us home in his time. Heaven is obviously wonderful but there might be more that God has planned for you .It's very hard to understand why life can be so difficult but God knows our suffering even if we can't understand why and remember he is always in control . Pray, ask for guidance and help, there's no harm in it, we really aren't alone. I am sorry your sons are off hunting, they might be finding this hard too , perhaps pray for family support ?.God does answer prayers but remember sometimes not in the way you would expect. I would take little steps, try not to worry about the future but trust in God as he will carry you through this....