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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Jul 18 8:22am | Replies (622)Comment receiving replies
Welcome to Mayo Connect, @bobbie1955. I love your attitude of “I have good days and bad days, but just get on with it.” Isn’t that the truth?! Some days it’s the best we can do. ☺️
So glad you popped into the forum to share your experience with having ET and your treatment plan. Have you been taking the hydroxyurea since your diagnosis is 2020?
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@loribmt
Yes I've been taking hydroxyurea since diagnosis, started of on smaller amounts every other day which have gradually been increased. I don't know what the maximum dose is and I take more medication than a colleague who has a similar issue. My next consultants appointment is just before Christmas, so we'll see what happens