Connect
← Return to Which Seizure Trigger Is Your Hardest Battle?
Discussion
Which Seizure Trigger Is Your Hardest Battle?
Epilepsy & Seizures | Last Active: Nov 25 8:39am | Replies (22)Comment receiving replies
@randallshields56
Hi Randy!
Thank you for sharing your triggers with the group.
Unfortunately, epilepsy and AEDs can both affect our cognition. I've experienced cognitive decline too and am still learning to navigate it. This is one of the major reasons for my stress – actually, my hardest trigger to manage.
I think it's really smart that you've been telling people upfront about your epilepsy and that you might need extra time to process questions – it helps manage their expectations.
I've adopted a similar approach – I let people with whom I have an ongoing relationship know about my epilepsy and that I sometimes need extra time to remember things or respond to questions. Most people are understanding, which really helps reduce the stress. For example, I recently told my father's lawyer I wasn't having a good day and asked him to email me his questions so I could respond when I felt better.
I'm glad to hear that breathing exercises help you settle your mind, too!
If I remember correctly, you mentioned in other discussions that you use sunglasses to manage your light sensitivity. How has that been working for you? Have you noticed fewer seizures when you wear them in situations with flashing lights?
You also mentioned going into "shutdown mode" when someone is angry. Could you tell me more about that, please?
Chris
Replies to "@randallshields56 Hi Randy! Thank you for sharing your triggers with the group. Unfortunately, epilepsy and AEDs..."
@santosha
the prescription sunglasses, have reflective tint, can't see my eyes, at the corners the dim the light coming in really helps. i look like a power ranger. but the light restriction also helped me to think better, didn't have that glare.
could concentrate better
Connect
@santosha asked in rapid fire for my brain but will scroll and check questions then number them.1- cognition, what a thing to navigate. my functions were so many that needed addressed. learning, speech, memory even touch was just for starters. we as a family had to learn and adapt as we went day to day. -2- flashing lights, the shades my daughter ordered me with my prescription helps. I still try to get away as soon as able, no seizures from the school bus lights or in the last couple to few months.3- the mode. when someone would shout at something i thought was done correctly by me, not even at me directly i would hear out the yelling and then say that i would try harder, usually with tear filled eyes, then would go to my room. it has been addressed with the family and things have gotten better. hope i answered some of what you needed. have a blessed day.