Has anyone been diagnosed with Central Pain Amplification?

@anniesezu812
Im not sure im doing PM correctly, so this is on public forum, no matter. Central pain syndrome is usually the diagnosis after a stroke or a spinal cord ' something ', stroke etc.
CRPS is usually is reserved for a limb injury and results from ultimate pain out of proportion to the injury. Due your knee ( a limb) i would have thought CRPS more correct diagnosis.
I guess my diagnosis came from my symptoms . My injury was abdominal, not a limb however. It was a small abdominal wall tear, that medics ignored for 6 yrs. Lord knows why. I was wheelchair bound, couldn't eat, digestive system became agony. lost 30 lbs to 78lbs. Couldn't walk , looked 7 months pregnant....6 yrs later got laparoscopy to repair. Finger tip excruciating pain at injury site never left. Recently im told they believe the injury was so long without attention it has irritated Celiac ( solar Plexus) . That's a large bundle of nerves sitting near aorta.
CRPS gets worse overtime usually. My CRPS and Celiac Plexus pain / add in Stimulator irritating nerves add up to a WORLD OF PAIN !! So that's the long version of how I was diagnosed with CRPS, but like you I think there is more going on. I've experienced if you're a difficult cases its a RARE Dr who is interested....no time to figure us out. Not sure this helps but that's my story! Very long...sorry.
PS are you the lady who wrote she sometimes feels she's dying?...cuz I do too. I mean it sincerely. I sent all my details to overseas friends not expecting to survive some terrible nerve flare ups. Its a terrifying feeling. I take xanex to help me cope... and yes I am weaker. Obviously some central nervous system issues.
Have you heard of TMS...Dr Sarno?
I think most chronic pain sufferes have an element of TMS to their condition.

@anniesezu812 you can PM or write on this forum any time. It also may help someone.

@anniesezu812
Im not sure im doing PM correctly, so this is on public forum, no matter. Central pain syndrome is usually the diagnosis after a stroke or a spinal cord ' something ', stroke etc.
CRPS is usually is reserved for a limb injury and results from ultimate pain out of proportion to the injury. Due your knee ( a limb) i would have thought CRPS more correct diagnosis.
I guess my diagnosis came from my symptoms . My injury was abdominal, not a limb however. It was a small abdominal wall tear, that medics ignored for 6 yrs. Lord knows why. I was wheelchair bound, couldn't eat, digestive system became agony. lost 30 lbs to 78lbs. Couldn't walk , looked 7 months pregnant....6 yrs later got laparoscopy to repair. Finger tip excruciating pain at injury site never left. Recently im told they believe the injury was so long without attention it has irritated Celiac ( solar Plexus) . That's a large bundle of nerves sitting near aorta.
CRPS gets worse overtime usually. My CRPS and Celiac Plexus pain / add in Stimulator irritating nerves add up to a WORLD OF PAIN !! So that's the long version of how I was diagnosed with CRPS, but like you I think there is more going on. I've experienced if you're a difficult cases its a RARE Dr who is interested....no time to figure us out. Not sure this helps but that's my story! Very long...sorry.
PS are you the lady who wrote she sometimes feels she's dying?...cuz I do too. I mean it sincerely. I sent all my details to overseas friends not expecting to survive some terrible nerve flare ups. Its a terrifying feeling. I take xanex to help me cope... and yes I am weaker. Obviously some central nervous system issues.
Have you heard of TMS...Dr Sarno?
I think most chronic pain sufferes have an element of TMS to their condition.

@anniesezu812
I’m so glad you have TMS, Xanax, and anything else to help you and your pain. Do you have some family/friends’ support? My sister makes me laugh (lives in different state) so much it is good therapy. It is so hard to accept that in 2025 doctors can still not be able to diagnose chronic pain illnesses. I’ll try and figure out PM so we can do that👍🏻🙏.

I would certainly be up for doing daily exercises if I could be assured they were actually helping me. Whenever I am doing any kind of exercises, my pain level ramps up even more. I would love to walk, but every step I take is excruciating. Very unpleasant. Maybe medical marijuana would help. Who knows. Five years ago I was skiing, biking 40 to 50 miles a week, etc. Now, I'm lucky to get 300 steps in a day. May you all have a blessed day!

@anniesezu812
Im not sure im doing PM correctly, so this is on public forum, no matter. Central pain syndrome is usually the diagnosis after a stroke or a spinal cord ' something ', stroke etc.
CRPS is usually is reserved for a limb injury and results from ultimate pain out of proportion to the injury. Due your knee ( a limb) i would have thought CRPS more correct diagnosis.
I guess my diagnosis came from my symptoms . My injury was abdominal, not a limb however. It was a small abdominal wall tear, that medics ignored for 6 yrs. Lord knows why. I was wheelchair bound, couldn't eat, digestive system became agony. lost 30 lbs to 78lbs. Couldn't walk , looked 7 months pregnant....6 yrs later got laparoscopy to repair. Finger tip excruciating pain at injury site never left. Recently im told they believe the injury was so long without attention it has irritated Celiac ( solar Plexus) . That's a large bundle of nerves sitting near aorta.
CRPS gets worse overtime usually. My CRPS and Celiac Plexus pain / add in Stimulator irritating nerves add up to a WORLD OF PAIN !! So that's the long version of how I was diagnosed with CRPS, but like you I think there is more going on. I've experienced if you're a difficult cases its a RARE Dr who is interested....no time to figure us out. Not sure this helps but that's my story! Very long...sorry.
PS are you the lady who wrote she sometimes feels she's dying?...cuz I do too. I mean it sincerely. I sent all my details to overseas friends not expecting to survive some terrible nerve flare ups. Its a terrifying feeling. I take xanex to help me cope... and yes I am weaker. Obviously some central nervous system issues.
Have you heard of TMS...Dr Sarno?
I think most chronic pain sufferes have an element of TMS to their condition.

@anniesezu812 I agree doctors don’t want to take the time with their patients to HEAR them. That’s why I research on my own has helped me more than talking to 17 different doctors. I’m exaggerating. But like how many times do I have to tell my story over and over to get someone to listen to me. I know my body better than them. But they just won’t take the time. My primary care doctor I have been with over 30 years. He listens to me, he trusts me he knows I do my research and due diligence before I bring anything to him. I have a log, and a journal for keeping up with how I feel daily. Gentle hugs and best wishes.

Im in a similar position. I solve my problems better than the Drs but its hard to get them to listen. I had a SCS, now removed but my health has nose dived since that awful device.
My pain levels are excruciating and my meds no longer helping. Where to turn next ....living soo hard but I refuse to give up.
I think I have centralized nerve syndrome...its debilitating/ pain so debilitating.
Wishing us both luck 🙏

Could you share your symptoms from Central Pain Amplification? I have serious flareups, hot/cold body temps, and serious pain in different parts of my body. I have gotten weaker all over in the past 5 years. I see a GP, pain specialist, orthopedic, rheumatologist, counselor, etc. No on can explain the pain. I feel there is a more definitive diagnosis. Appreciate any of your comments. Thank you.

Has anyone tried the new drug for pain, Journavx? It is very expensive and you can only use it for 2 weeks.
It is not an opiod or NSAID.
Marlie