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zinnia55 avatar

Oral Lichen Planus, how are you coping?

Autoimmune Diseases | Last Active: Dec 24, 2025 | Replies (19)

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@zinnia55
Hmmm, I have never heard of that. I use Clobetasol and a tacrilimus swish 3x /week. That seems to keep the symptoms down, however, I am under quite a bit of stress as I was helping to care for my mother and she passed a couple months ago. The will is going to have drama and I am already losing sleep so I am certain symptoms will start to flare!
I only see the specialist once per year and I never feel as though I know what I am doing as far as this goes. 🤷‍♀️

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Replies to "@zinnia55 Hmmm, I have never heard of that. I use Clobetasol and a tacrilimus swish 3x..."

@microgirl I am sorry about the loss of your mother, I hope you can find some peace soon. How long have you ceen using the clobetasol and tacrolimus? Do you ever have a clear mouth? I was using dexametasone swish and tacrolimus ointment and it was doing great for about 3 weeks old spots cleared up but now I see new spots in different places 🙁 Its so frustrating.