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Has anyone had success taking Alpha lipoic acid for neuropathy?

Posted by carol1024 @carol1024, Nov 18 8:22am

Has anyone had good results taking Alpha lipoic acid for neuropathy caused from Chemo (CIPN)? A fellow patient told me she didn't have neuropathy anymore and when I asked why, she said she was taking Alpha lipoic acid. I bought some and after getting approval from my oncologist, started taking 2 a day, the recommended dosage. When I did research to validate the benefits, some info was positive while some was indifferent. I honestly think it's working. It's been about 2 weeks. I will suggest if you do start using it, take it with a soda. I tried water, milk, after a meal and I had heartburn so bad. When I decided to take it with soda I had no heartburn at all. Dr Pepper works for me and I take it on an
empty stomach with my regular morning meds. I was just curious if someone had any positive feedback. Thanks

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gen55 | @gen55 | 4 days ago

My doctor had me try it, it didn't help me.

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janekwick | @janekwick | 4 days ago
In reply to @carol1024 "@mrmacabre I think it's nerves that aren't completely dead. There is evidence that the numbness and..." + (show)
Profile picture for carol1024 @carol1024

@mrmacabre I think it's nerves that aren't completely dead. There is evidence that the numbness and tingling gets better once chemo has stopped. It may be different for someone with a condition such as diabetes where it doesn't "get a break" like it does when chemo treatments end.

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@carol1024
I have been using Alpha LipoicAcid along with Vitamin B-12 with good results for my peripheral neuropathy in my feet. Has helped with numbness and lack of sensation when walking. Still working on balance by doing PT.

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2 replies
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carol1024 | @carol1024 | 3 days ago
In reply to @janekwick "@carol1024 I have been using Alpha LipoicAcid along with Vitamin B-12 with good results for my..." + (show)
Profile picture for janekwick @janekwick

@carol1024
I have been using Alpha LipoicAcid along with Vitamin B-12 with good results for my peripheral neuropathy in my feet. Has helped with numbness and lack of sensation when walking. Still working on balance by doing PT.

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@janekwick I take 2 of the B complex plus a multivitamin.

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bingo2a | @bingo2a | 3 days ago

It has not helped me. I’ve been taking it for about a year now.

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1 reply
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bingo2a | @bingo2a | 3 days ago
In reply to @janekwick "@carol1024 I have been using Alpha LipoicAcid along with Vitamin B-12 with good results for my..." + (show)
Profile picture for janekwick @janekwick

@carol1024
I have been using Alpha LipoicAcid along with Vitamin B-12 with good results for my peripheral neuropathy in my feet. Has helped with numbness and lack of sensation when walking. Still working on balance by doing PT.

Jump to this post

@janekwick
I take 600 mg of alpha lipoic acid daily and 500 mcg of B-12 but no improvement. Can I ask how much alpha lipoic acid you take daily?

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2 replies
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janekwick | @janekwick | 3 days ago
In reply to @bingo2a "@janekwick I take 600 mg of alpha lipoic acid daily and 500 mcg of B-12 but..." + (show)
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@janekwick
I take 600 mg of alpha lipoic acid daily and 500 mcg of B-12 but no improvement. Can I ask how much alpha lipoic acid you take daily?

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@bingo2a

I take 300 mg of Alpha Lipoic and 2000 mcg of Vitamin B-12

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martinsmckinney | @martinsmckinney | 3 days ago

It can't hurt. I take it and B-12 to reduce pain. Uncertain to what degree it helps. I am prescription drugs as well.

Cheers,

Martin

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catbunting | @catbunting | 3 days ago
In reply to @mrmacabre "@carol1024 All I know is that my levels of numbness and pain has increased over the..." + (show)
Profile picture for mrmacabre @mrmacabre

@carol1024 All I know is that my levels of numbness and pain has increased over the past 10 years, and I'm not diabetic, not even close. I'm one of the lucky patients that went through every test there is to try and determine the root cause of my neuropathy, and was given a diagnosis of idiopathic poly neuropathy, no cause can be determined. So I have a hard time reading about people who's symptoms have been improved, if indeed they have been permanently.
My doctor, as well as all 4 neurologists that I saw over the course of almost 10 years have all said otherwise. It's permanent, in my case at least.

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@mrmacabre I've been dealing with idiopathic neuropathy for about 10 years also. This past year I've been using a tens machine especially made to place ones feet on. It looks like a large platter. I use it every evening for 30 minutes and it does seem to be reviving the sensation some. I also take low dose naltexone for pain in the morning and gabapentin at bed time. Nothing has been any help up until I started using the tens machine

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darinjasman | @darinjasman | 3 days ago

It seems like most people are just trying to find a cure to their damaged myelin sheath, I’m trying a different approach, what is causing the damage in the first place? I was directed to MayoClinic Website after reading more about synthetic vitamin B6 which is in a lot of our products! Hopefully someone else has already noticed this as well!

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darinjasman | @darinjasman | 3 days ago
In reply to @carol1024 "@mrmacabre I think it's nerves that aren't completely dead. There is evidence that the numbness and..." + (show)
Profile picture for carol1024 @carol1024

@mrmacabre I think it's nerves that aren't completely dead. There is evidence that the numbness and tingling gets better once chemo has stopped. It may be different for someone with a condition such as diabetes where it doesn't "get a break" like it does when chemo treatments end.

Jump to this post

@carol1024 if nerves are totally dead then how are you able to feel sensation still? Just curious.

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