Has anyone had a bad reaction to a spinal epidural?

Posted by sparklegram @sparklegram, Aug 31, 2019

Has anyone had a bad reaction to a spinal epidural? I had one 4 days ago. I seem to have lost my appetite, and have to take long naps during the day. I've had several epidurals over the years and never had a reaction like this.

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I had on about a month ago, it made me feel trunk for about 2 hrs did nothing for anything but made my neck worse, they did two on each side c2-3 and c3-c4, I will not have anymore

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Profile picture for Jennifer, Volunteer Mentor @jenniferhunter

@janie6696 Thank you for for sharing your experience. I won't do another spinal injection and they have real risks. The injections are supposed to always be placed outside of the dura which is the covering on the brain and spinal cord. I do know from my own experience of being a patient with spinal cord compression, that the symptoms and pain the compression caused did affect the rest of my body on both sides. I had pain everywhere in my body including both feet which was caused by the spinal cord compression at C5/C6. I had bone spurs and a herniated disc that were left paracentral, so slightly off center to the left. It also depended how I moved or turned my head which changed the places I felt pain. If anything touches the spinal cord, it can cause damage and the spinal cord is floating in spinal fluid which helps to cushion it. My cervical spine surgery removed the bone spurs and disc that were pressing into it relieving the pressure and it was done before there was serious compression, but there was no fluid space left. The surgery for cervical stenosis resolved all my pain symptoms in my body and I had no more pain in my legs or feet. A lot of spine surgeons miss that connection and it is called "funicular pain" or referred pain. There is no test for this except that when surgery fixes all the pain, then you know that the cervical spinal stenosis was the cause of that pain.

I'm sorry that the doctor didn't take responsibility and abandoned your husband. As patients we come to be helped and we put our trust in our providers. I had a surgeon dump me too as a patient after he did carpal tunnel surgery which did not fix all the symptoms. I came back to him with my hands turning blue and he took my pulse, told me I was fine, and wrote in my records that I was malingering and didn't want to go back to work. He had completely missed that I also had thoracic outlet syndrome which does interrupt blood flow in the arms and causes overlapping symptoms with carpal tunnel syndrome. When I came back to him with the TOS diagnosis, he refused to let me go to physical therapy claiming he would not know if it would help me or not. Well, at least that was true. He just wanted to get rid of me as fast as possible. I had to find a new doctor who did send me to physical therapy.

With the availability of internet searches, it is worth looking up information to see if a doctor has disciplinary actions against them with the state's medical board. I also trust the opinions and recommendations of my doctors who have excellent reputations and who have done well with my care. As patients, we can also just say no as long as we fully understand the risks and consequences of our decisions. Spinal injections may help reduce inflammation and pain temporarily, but it doesn't fix the problem that is causing the pain, and the steroids are not FDA approved for injections into the spine. Another thing to consider is that for the surgeon there are risks too, and they don't want to fail. They can postpone surgeries by sending patients for injections instead which puts the surgeon's wishes first, not the patient's needs. I have learned not to blindly trust, but to ask questions and advocate for myself. I have to agree with you, as I think spinal injections are too risky for something that may have a temporary benefit or no benefit.

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Thank you for this. I am in so much pain after this last injection. I know its exactly what you're explaining here. C5/C6 degeneration, spinal stenosis, no fluid, bone spurs. My circulation is terrible in my hands and feet. I feel like nobody wants to listen to me. I'm 48 years old and I look healthy which doesn't do me any favors. I'm miserable and have no quality of life but laying on the floor or bed every chance I can for relief and crying. This gives me some hope to keep advocating for myself. Ty Jennifer. With Love.

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Profile picture for jennleigh19 @jennleigh19

Thank you for this. I am in so much pain after this last injection. I know its exactly what you're explaining here. C5/C6 degeneration, spinal stenosis, no fluid, bone spurs. My circulation is terrible in my hands and feet. I feel like nobody wants to listen to me. I'm 48 years old and I look healthy which doesn't do me any favors. I'm miserable and have no quality of life but laying on the floor or bed every chance I can for relief and crying. This gives me some hope to keep advocating for myself. Ty Jennifer. With Love.

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@jennleigh19 Advocating for yourself is very important. The ability to do that comes from learning as much as you can about your own health and how conditions can influence each other. I had to keep advocating for myself and while I was doing that, I was also facing fear of surgery that I knew was needed. C5/C6 is a spinal level easily affected by a whiplash injury.

It is your choice if you want to do spinal injections or not. They can be beneficial, but also not so good if too many are done or if there are adverse effects. Your doctors will not understand the whole picture all the time of what you are going through. Some are better at it than others, but specialists tend to look at their own slice of that puzzle. It's your job as a patient to remind them of adverse reactions you have had because they may not notice information in your records and may not have time to read prior records.

Looking healthy could mean different things, and many issues can exist in patients who look healthy. Spines do change with aging, and problems that were not so bad can in time get much worse as the discs dry out and shrink a bit. That is normal aging, but it doesn't help if there is an injury like a weak disc that can open up with a crack and eventually rupture. My C5/C6 ruptured which caused bone spurs to grown next to the spilled nucleus which caused spinal cord compression. My disc had collapsed by 50% and I lost a quarter inch in height because of it. After spine surgery, I regained my normal height.

Are you planning to consult with a spine surgeon about surgery? I know that is a big step, and forgive me if you'd already mentioned it. I had to consult 6 surgeons before I found one who would take my case. It shouldn't be that hard to be a patient, but the symptoms in my case scared a bunch of them out of helping me. Surgeons don't want to fail, and their statistics are recorded, so it is easier for them to pass on helping surgically and send a patient for injections or therapy. When I felt frustrated by all of this searching, it as my dentist who told me that I wouldn't really want a surgeon operating on me if he didn't know what was wrong or why I had symptoms. Well said. I kept searching and found the best one at Mayo. When I had spine surgery, I was in my late 50's.

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