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jamielynn777 avatar

Newly diagnosed with AML (FTL3 TKD)

Blood Cancers & Disorders | Last Active: Dec 9, 2025 | Replies (78)

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @sonieaml. Thank you, I’m happy too! ☺️ It was an arduous odyssey with AML. The initial induction and two consolidation rounds of chemo. Those got me to a temporary remission but doctors anticipated a relapse within the year. Long term, ongoing maintenance wasn’t an option for me. So a month later I had a BMT. That sealed the deal for me. Some of the meds available now, were not approved yet at the time of my transplant. Continued research and developed are so important to finding cures for this nasty form of blood cancer.

It’s really wonderful that you’re doing well on your treatment program! Years ago, people in our age group didn’t have many, if any options. And thank you for being such a positive voice in this AML support group! It’s important so that members like @bettersleep68 realize that these treatments can work to help keep AML under control.
Wishing you and your family a Happy Thanksgiving. We all have much to be thankful for. 🦃

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Replies to "Hi @sonieaml. Thank you, I’m happy too! ☺️ It was an arduous odyssey with AML. The..."

@loribmt
Thank you for being here for us!
Your first hand experience is invaluable.
Maintenance for me has been, as you noted, in part, because of all the tremendous advances that have been made in the past 3+ years and continue to be made! I will have a BMB on 12/5…had an MRD blood draw this past week. Looking to locate the cause of my WBC, ANC and sometimes platelets not coming back up. Solution may be as simple as just cutting back on my treatments or extending them out from every 5 weeks to every 6-7? The other cause may be I have developed new mutations. Whatever they find I am thankful every day for the care team I have and their willingness to help give me a great quality life. Thanksgiving wishes to all not just this next Thursday but EVERY DAY!