@maraca gee, I’m so sorry to hear u are not well. Im surprised u have lost weight, I have not, even though I’m not eating very well, I still keep down a few tablespoons of rice, and occasionally the advocado and banana. I tried chewing a handful of peanuts two days ago to bock me from diarrhoea, but since most of my teeth have gone, eating the peanuts was difficult, (I will crush a teaspoonful of them next time) something I think u would not be able to do with your mouth or throat in that condition. I’m now in my 4 th week and have been told I will be worse this week, and next.
I’ve lost my pubic hair (definitely no Brazilian on the horizon) but only a few brush loads of head hair.
The main thing is to look after yourself. I was too ill to drive anywhere. I sleep most of the day and the night. No housework, cooking, or outings, mainly bedroom, loo, back to bed, and this is the cycle of my life. I do talk on the phone to some friends, sometimes an hour or more and they support me via conversation even though I am mumbling my words, can’t articulate well, repeat my sentences and know my brain and cognitive functioning is being affected by the treatment. I truly hope u are not experiencing the same. Some of my friends really cannot grasp the severity of the pain and anguish, the exhaustion, the letting go of all dignity in trying to clean up after my ablution disasters, especially when I can’t make it several feet to the ensuite in time. I want to tell you that your troubles will pass as drs tell me this. But I wonder if it is believable. Some ice cubes on the lips help somewhat when I can’t keep hydrated or swallow anything. Please take care the best u can and keep in touch with Mayo connect. If you must vent do so, as most using this brilliant site will understand. There is no judgement here, just help from the mentors and others experiencing similar circumstances.