I am living with MCL. I went through 2 (tumor) "debulking" cycles where I would get infusions with Bendamustine and Rituximab. Then I got a PET and my oncologist said I can drop the infusions. I am taking Calquence twice a day and I expect to be taking it for life.

I've been reading a lot of MCL literature and instead of remission, they talk in terms of PFS (Progression Free Survival). This means that if the disease cannot progress or even is in retreat, that is enough to justify the treatment. And PFS can last for years. I'm in PFS and I call it a win. They tell me it's possible that I might go into remission enough to drop that Calquence for a while, but then I would be closely monitored in case it comes back. I feel like I'm winning; but I also feel that MCL will never make it the the rear view mirror.