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Which Seizure Trigger Is Your Hardest Battle?
Epilepsy & Seizures | Last Active: Nov 25 8:39am | Replies (22)Comment receiving replies
@santosha again the trigger has changed, i can do everything right to a t. along comes a question that i need to answer and don't have a correct reply for and make that person angry or jump to why did you say that, how can you do that, in a matter of seconds your boxed into a corner just for saying something wrong or not meant as they took it. THIS is where i hold up one finger (which means give me a second to answer ) think of what you want said again and regardless how difficult. Spit it out. its helped if they except the new answer or even help if there impatient. these cause me to take a breathing exercise after just to settle the mind again. too difficult and i go to my room or palce i can relax some and get under control.
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@randallshields56
Hi Randy!
Thank you for sharing your triggers with the group.
Unfortunately, epilepsy and AEDs can both affect our cognition. I've experienced cognitive decline too and am still learning to navigate it. This is one of the major reasons for my stress – actually, my hardest trigger to manage.
I think it's really smart that you've been telling people upfront about your epilepsy and that you might need extra time to process questions – it helps manage their expectations.
I've adopted a similar approach – I let people with whom I have an ongoing relationship know about my epilepsy and that I sometimes need extra time to remember things or respond to questions. Most people are understanding, which really helps reduce the stress. For example, I recently told my father's lawyer I wasn't having a good day and asked him to email me his questions so I could respond when I felt better.
I'm glad to hear that breathing exercises help you settle your mind, too!
If I remember correctly, you mentioned in other discussions that you use sunglasses to manage your light sensitivity. How has that been working for you? Have you noticed fewer seizures when you wear them in situations with flashing lights?
You also mentioned going into "shutdown mode" when someone is angry. Could you tell me more about that, please?
Chris
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