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Frontotemporal Dementia

Brain & Nervous System | Last Active: Mar 16, 2022 | Replies (42)

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@hopeful33250

Hello @jccr and welcome to Mayo Connect. First of all, I want to congratulate you on being proactive in your treatment. Exercise, both cognitive and physical are great ways to keep any illness from becoming your major focus. Have you looked into support groups that might be available in your locale? When you meet with others who have a similar diagnosis you find strength from their stories and their victories. Suppport groups also provide the social interaction which is so important for any brain disorder. I'm sure you will find much encouragement as you join with others. In the meantime, continue to use Mayo Connect as a sounding board for your concerns. We have all faced serious illnesses and we understand how difficult it can be to deal with. Keep in touch and let us know how you are doing. Teresa

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Replies to "Hello @jccr and welcome to Mayo Connect. First of all, I want to congratulate you on..."

Hello there. Thank you for your reply and suggestions. I feel like Alice in Wonderland in trying to advocate for myself and finding a local support group in the north Orange County region of California. I spoke with a respresentative from the AFTD and inquired about a group in my region and there is none. I am awaiting receipt of an information packet and curious to read the contents.

what if there's
no support groups in my area what do I do I feel so isolated and need socialiization