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Severe Iron Overload caused by too many IV Iron infusions
Blood Cancers & Disorders | Last Active: Nov 23 9:56pm | Replies (50)Comment receiving replies
@wakeley I don't think you really would. I only have 1 kidney. I can't even have Chelation therapy. And since my bone marrow also has ferritin in it, I'm not producing enough healthy red blood cells to have anymore phlebotomies. I'm in poor health, with CHF and a bunch of other comorbidities. Everything my team of 6 Specialists could do to lower the amount of ferritin in my body either will cause my only kidney to shut down or it will lower my hemoglobin so low I could end up with Hypoxia. The doctor that poisoned me with IV Iron infusions did a good job of it. After 13 infusions my ferritin level was 2149ng/ml. That was 2 years ago. Shortly after the infusions, my left kidney atrophied, and in June my Pancreas atrophied. But that's what ferritin levels over 1000 do. They either shut down organs or they cause Cancer. My situation is not an enviable one to have. I pray that you are doing better than I am. God bless you. I do have access to all the right drugs and procedures, I just can't take the drugs and I can't have the procedures. I wish you the best. I fear my journey won't last much longer. I'm praying for a miracle.
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@wakeley I truly thank you for the hug and you are welcome to follow me if you'd like. I don't know how often I'll post. It's just going to be depending on how I feel physically, mentally and emotionally. I'm scared. I'm ashamed to admit it but I am. I'm 65 years old and I'll be 66 on January 3rd. I never thought I'd live this long. I was a severe alcoholic and drug addict until July 18th, 2009, when I gave up alcohol and street drugs for good. At 50 years old I went back to college to become an addictions counselor. That's what I did the remainder of my working life until the second of two cancers I got. The first was prostate cancer in May of 2021, and the second was in March of 2022 while I was still being treated for the first cancer with radiation., and hormone therapy. The second one, cancer in my left Ureter was treated with chemotherapy. I retired on 1/3/2022 at 62 years old and applied for disability, which I got in October of 2023. I was and still am cancer free, but the node in my lungs is large and growing and the lesions in my liver are very large. I believe these were caused by the morbidly high ferritin levels, which have already caused my left kidney and my pancreas to atrophy. But that's what ferritin does. It's a Systemic wide overload. I pray first that God will heal me and secondly that my doctors can keep me alive. Thank you for listening. and God bless you.