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Severe Iron Overload caused by too many IV Iron infusions
Blood Cancers & Disorders | Last Active: Nov 23 9:56pm | Replies (50)Comment receiving replies
I have read your posts with great interest and would like to follow your journey. I, too, have high iron overload and it is caused by blood transfusions. In simple terms my bone marrow does not produce enough red blood cells and my haemoglobin level is low. I am required now to have 2 bags of blood every 3 weeks which of course does not help the iron overload. Previous history was breast cancer in 2016 and I have the red blood cell problem “because it was just the card I was dealt”. I had radiotherapy and chemo. I am currently having chelatin therapy which is to take 2 tablets daily. This is a light dose as I cannot tolerate higher. I am in Australia and it seems to me that you have access to more medication than I have. My very best wishes to you. Would love to follow your journey.
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@wakeley I don't think you really would. I only have 1 kidney. I can't even have Chelation therapy. And since my bone marrow also has ferritin in it, I'm not producing enough healthy red blood cells to have anymore phlebotomies. I'm in poor health, with CHF and a bunch of other comorbidities. Everything my team of 6 Specialists could do to lower the amount of ferritin in my body either will cause my only kidney to shut down or it will lower my hemoglobin so low I could end up with Hypoxia. The doctor that poisoned me with IV Iron infusions did a good job of it. After 13 infusions my ferritin level was 2149ng/ml. That was 2 years ago. Shortly after the infusions, my left kidney atrophied, and in June my Pancreas atrophied. But that's what ferritin levels over 1000 do. They either shut down organs or they cause Cancer. My situation is not an enviable one to have. I pray that you are doing better than I am. God bless you. I do have access to all the right drugs and procedures, I just can't take the drugs and I can't have the procedures. I wish you the best. I fear my journey won't last much longer. I'm praying for a miracle.