Heavy blood in urine, stent in right kidney they cannot find source

Posted by shcollier @shcollier, Oct 28 4:58pm

My family and myself were helping my oldest daughter move into her first apartment. I was literally doing no heavy lifting the most I did was help upend a dresser onto a furniture dolly and a couple of loads of boxes with a dolly. After getting done moving her in, I had to use the restroom and urinated blood in my daughter’s bathroom. (As I had a mystery blood pee in the past 10 years prior and with urologist, and everybody else giving up once they couldn’t find anything and symptoms passed life went on and I felt like I had some experience here with this now.) Now in my daughter‘s apartment, I took a photo of the toilet so I could compare blood coloring in a day or two but a little while later when helping breakdown boxes I lacerated my finger fairly deeply so I went to the emergency room and decided it would be a good time to also mention I had just peed blood that day. Emergency room doc glued my finger together and sent me for CT scan, which yielded no results other than they could see blood product in my kidney and bladder. Emergency room doctor offered to let me stay but I said why should I stay when I’m having zero pain and zero issues other than a cut finger and now that you’ve fixed my finger and peeing in a little bit of blood I am in zero pain (other than cut finger) so I went home. Turns out that was a big big mistake. Spent all that night in probably the most intense pain I think I’ve ever felt. I’m talking beyond breaking my leg and beyond breaking my arm but for some reason I did not wake up my wife or call an ambulance and I roughed it out till morning. Once my wife woke up, she could see me in the home office layer on the floor in a cold sweat and she could plainly see the state I was in and she knows I usually never complain, especially about pain so she knew something was very bad. She made me get in the car and she took me to another hospital that was associated with my primary doctor and check me into the ER again. Now at the second ER I’m in between a 8 to 10 on the pain scale as the pain is kind of coming in waves but never getting much easier than an eight the emergency room gives me some morphine and the accompanying Zofran, which does absolutely nothing for the pain. Emergency room doctor then gives me some Toradol in my IV which after about 20 minutes is taking the edge off and within about 40 minutes had me down to about a two or three on the pain scale. Now that I can concentrate on things, the doctor sends me down to CAT scan where I get my second CT of the weekend and they come up with the same results that the first hospital did they see random blood in the bladder and kidneys, but they cannot see any stones or cause. As my pain had been so intense emergency room is now consulting with urology and urology says to get a specialized bladder CT scan with contrast so now I head down for my third CT scan of the weekend which confirms what the first two said, but apparently in just more glowing detail. Urology wants to keep me based on what they saw in the new scan. They do a exploration scope up into my bladder and kidney, but they cannot see anything due to heavy amounts of blood so doctor places a stent into my right kidney duct (forgive me for not knowing the correct medical term) in the hopes that the stent will allow the blood to drain and they can go back in in a week or two and hopefully see what is causing the issue. I spent two days in the hospital and went back to the ER the day I got released because I couldn’t just sit on the couch as I was stir crazy and started doing things around the house which caused my pain to shoot back up to a nine or a 10 so went back to emergency room. They gave me Toradol again and sent me home with a prescription this time to manage my pain. Wife won’t let me get off the couch other than to go to the bathroom and every urination for the last seven days since I’ve had the stent placed has been uncomfortable to painful with heavy, heavy blood to the point that you cannot see the bottom of the toilet at all and lots of the time with clots (while I can’t see them in the toilet due to blood, I can feel myself passing them) at absolute best my urine color is a medium cherry Kool-Aid, and usually it looks like I poured tomato juice or a V-8 in the toilet. Now I’m scheduled Thursday for the urologist to go back in and scope again and to replace stent also for some reason, but as I’m still peeing so much blood why are they going to see anything this time as it doesn’t seem like the blood has decreased even a little bit? Are they just fishing at this point? do I need a kidney biopsy? I am confused and a bit scared on where we go from here.

Interested in more discussions like this? Go to the Kidney Conditions Support Group.

@shcollier, I moved your post to the Kidney Conditions group here: https://connect.mayoclinic.org/group/kidney-conditions/ as well as the Bladder Conditions group https://connect.mayoclinic.org/group/bladder-conditions/

I can imagine that you are confused as the doctors that a reason or source for the bleeding has not yet been found. Unsettling to say the least. I'm glad that the doctors continue testing to get to the bottom of what is going on. Keep asking questions.

Blood in urine (hematuria) can be caused by a wide range of things as listed in this article from Mayo Clinic
- Hematuria https://www.mayoclinic.org/diseases-conditions/blood-in-urine/symptoms-causes/syc-20353432

Do you have pain when you pee? Was infection ruled out?

REPLY
Profile picture for Colleen Young, Connect Director @colleenyoung

@shcollier, I moved your post to the Kidney Conditions group here: https://connect.mayoclinic.org/group/kidney-conditions/ as well as the Bladder Conditions group https://connect.mayoclinic.org/group/bladder-conditions/

I can imagine that you are confused as the doctors that a reason or source for the bleeding has not yet been found. Unsettling to say the least. I'm glad that the doctors continue testing to get to the bottom of what is going on. Keep asking questions.

Blood in urine (hematuria) can be caused by a wide range of things as listed in this article from Mayo Clinic
- Hematuria https://www.mayoclinic.org/diseases-conditions/blood-in-urine/symptoms-causes/syc-20353432

Do you have pain when you pee? Was infection ruled out?

Jump to this post

@colleenyoung
No UTI. They went back in 2nd time replaced stent and urologist did laser ablation on what they called an abnormality. Pathology came back as “ CK7 positive epithelial cells
which are nonreactive with CA-IX, P504S, and CD117. The findings may not represent the targeted lesion due to the
abundance of hemorrhage and inflammation as well as the paucity of viable tissue. Additional tissue procurement is
recommended.” So urologist said they cut out the abnormality portion so additional procurement isn’t possible currently. Now sched for quarterly ct scans with contrast for who knows how long. Guessing they are just making sure no additional things found? Still urinating blood on and off (but ligh pink at least now) even after 2 weeks of 2nd stent being removed. Urologist went over acceptable amounts of blood to see in urine. Not idea what is going on now still have some discomfort in right kidney but no actual pain currently.

REPLY
Please sign in or register to post a reply.