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Has anyone had experience with Jakafi?

Blood Cancers & Disorders | Last Active: Dec 29, 2025 | Replies (94)

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Profile picture for deb913 @deb913

Hi there,
I had eosinophilic leukemia and was on Jakifi 25mg 2x per day (50 mg total) for 11 months with no noticeable side effects. Then I had an allogeneic stem cell transplant in November 2024 and came off jakifi. I recently had to go back on jakifi 10mg 2x per day for GVHD and haven’t noticed any side effects for the past month I have been on it.

They do monitor your bloodwork to make sure things are stable.

Good luck. It can be scary to start something new that has to be monitored but hopefully you’ll have a good experience with it as I did.
All my best,
Deb

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Replies to "Hi there, I had eosinophilic leukemia and was on Jakifi 25mg 2x per day (50 mg..."

@deb913 I’m 76 and have been on Jakafi for 1 year with no side effects. It helps with my itching and keeps my blood counts in line. I have PCV Jak 2 positive