← Return to Oral Lichen Planus, how are you coping?

Discussion
zinnia55 avatar

Oral Lichen Planus, how are you coping?

Autoimmune Diseases | Last Active: Dec 24, 2025 | Replies (19)

Comment receiving replies
Profile picture for zinnia55 @zinnia55

Hi all, just checking in to give an update on this hateful disease. I found a great dermatologist who put me on liquid dexamethasone (swish and spit) and tacrolimus ointment 2 x a day. My mouth has really cleared up except for a few stuborn spots. It has been exactly 3 weeks. I am really happy with the results and scared to death about when I stop using these meds. The dermatologist said the idea is to put it to sleep and not wake it up. My GP suggested looking into a very low dose of naltrexone, it would be an off lable use based on its antiinflammatoey properties. Anyway has anyone heard of this or tried it?

Jump to this post


Replies to "Hi all, just checking in to give an update on this hateful disease. I found a..."

@zinnia55
Hmmm, I have never heard of that. I use Clobetasol and a tacrilimus swish 3x /week. That seems to keep the symptoms down, however, I am under quite a bit of stress as I was helping to care for my mother and she passed a couple months ago. The will is going to have drama and I am already losing sleep so I am certain symptoms will start to flare!
I only see the specialist once per year and I never feel as though I know what I am doing as far as this goes. 🤷‍♀️