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Anyone taken Evenity (romosozumab) for Osteoporosis?
Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.
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@osteopatient2026
So happy to hear that for you! Good luck with Tymlos!
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1 Reaction@gretch19
I know what you mean but what I’ve read is at least with alendronate (Fosamax) you can take a “drug holiday” because it stays in your system for some time…Prolia has according to some reports continues improving but you have to stay on it. A catch 22! I’m 65 so I know what you mean…
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1 Reaction@lgreg I took Alendronate for four years. I had zero side effects. I went back into osteopenia, but then back into osteoporosis in two areas because apparently, once you go from osteoporosis to osteopenia, you're supposed to take a break from it. Two gynecologists neglected to take me off.
Just remember: you cannot eat or lie down for 30 minutes after you take it. Drink water in that 30 minute period. I used that time to meditate and imagine the drug making my bones stronger.
Good luck to you!
@gmom14 I agree; magnesium in the evening has such a lovely relaxing effect. I used to take .5 mg of melatonin about an hour after the magnesium, but my rheumatologist told me about study that melatonin isn’t as safe as we all thought, so I stopped.
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1 Reaction@susanfalcon52 My new rheumatologist maybstartnmenin Evenity, so I’m so happy to hear you had an easy time of it, AND that you had good results! Cheers to that!
Those side effects don’t sound bad at all, and far better than Tymlos!
I’m so happy I came across your post. Thank you for sharing!
@kristie2 I had a year of Evenity with good improvement, followed by a Reclast infusion in August which was easy but "creepy"...my first "infusion" type thing. However, I will be returning to my Osteo Doctor in May for a CTX test which is the same as C-telopeptide according to the book BONES by R. Keith McCormick, DC. FYI: Not all those with whom I spoke knew that CTX meant C-telopeptide.
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1 Reaction@gmom14 I have my CTX & P1NP and Calicum coming up in December. I do them before my infusion and then 3 months after the infusion and then before my next infusion. They are very important to do to make sure that your treatment is working. I also get a yearly DEXA and have the endocrinologist put in that’s medically necessary for treatment so my insurance will cover it.
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3 ReactionsQuestion about Evenity and insurance (non-Medicare): if it's administered at the doctor's office, it's a medical claim, I know. But, how would I know how it is priced? I know what a normal doctor visit costs, and if the doctor does additional tests, but I have no idea how an injection would be priced. If Evenity is not in the plan's formulary, does that mean the doctor would not get paid for doing an injection?
@njx58
Have you checked with the medical billing department at your docs office?
@njx58
I posted what I just went through…on another post. There is more that can be done than I ever knew about …I think they want it that way but certain wording can really help…
Medical necessity or urgent your t scores much more a signed letter from your doctor…