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IPF and Pulmonary Rehab

Lung Health | Last Active: Mar 29, 2017 | Replies (9)

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@llwortman

Hi and I'm so glad you found Connect and shared two stories.
I am a nine year lung cancer survivor. In 2008 there was little info for lung cancer patients especially never smokers.
A guided paced breathing (with an app) and a workbook helped save my breath and life! You may find some studies showing walking and deep breathing expertise help you and your friend, at least it is worth a try. Note: It took me three months post lung cancer surgery to notice the exercise was helping. Practice practice!
Have you thought about a second opinion?
Let's keep connected, ok?
Take care
linda

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Replies to "Hi and I'm so glad you found Connect and shared two stories. I am a nine..."

Thank you for the reply.
I have been bugging my friend to get another opinion because this just doesn't make sense to me. Hopefully I am wearing her down 🙂
Personally, I have done pulmonary rehab and then a level 3 pulmonary exercise program. It has made me a full blown exercise fanatic, at the gym 5 days a week. Bad lungs aside, I am in better condition today than I have been in decades. I am a believer, glad to hear you are too. It is as important as any medication we might take. Hope you are doing well with your recovery.
Debbie

Debbie: You rock. keep up the great work with "you" and your friend. Together maybe we can get your friend CONNECTed:-)
hugs
linda

Hi, I have not heard about workbook. Where would I find something like that. My husband wants me to call Mayo for an appointment for their opinion. I have bad spells where I can not breathe well even with oxygen and sleep sitting up straight in a chair. They usually pass after a few days but this one has been hanging on for weeks. My doctor put me on a steroid pack and it helps plus I live in AZ and the whole place is in bloom and the wind blows sand in the air. I am wearing a mask when I go outside. I feel foolish but anything that helps. About the mask, I have been avoiding crowds and activities where there are lots of people but now that I am wearing a mask, maybe I will get out more. Good talking with you. Lois

Hi Lois: I understand your difficulty breathingbin blooming PHX! I have a xperienc d the same difficulty and it may be very frightening. I have been seen in Mayo PHX ER and they have been most helpful, because the doctors Insaw understood the allergies and what to
administer.
The cool air conditoind inclosed shopping mall helped, and keeping hyderated was beneficial. Moving helps me too.
In times like this I have to really sit down breath slow and deep and focus on relaxing my nervous system while i calm my body. It helps me restore by breathing.
You're not alone. So l hope you keep CONNECTed.
Take care,
linda