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Smoldering Myeloma: Coping with the emotional toll and acceptance

Blood Cancers & Disorders | Last Active: Nov 19, 2025 | Replies (18)
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Profile picture for tominga @tominga

@amberl99
I have had SMM High risk for nearly 5 years. I took revlimid for the first 3 years, 3 weeks on and one week off, plus dexamethasone 40 mg once a week for a year. Happy to say the SMM has not progressed. Yes, I have blood work done every 3 or 4 months but all is well. Keep the faith

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Patty, Volunteer Mentor | @pmm | Nov 19, 2025

@tominga I’m so glad that you posted. Welcome to Mayo Clinic’s Connect.
I believe that MGUS and Smoldering MM are particularly frustrating because it’s as though we can see Darth Vader lurking, but we find ourselves without a light saber with which to defend ourselves.
I think it’s important to remember that with watchful waiting, we are taking measures to ensure that we stay diligent against multiple myeloma and other blood disorders. Thanks for your testimony and support.
I hope you stay engaged on the forum and let us know how you’re doing. Will you?

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