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Husband refusing dialysis

Caregivers | Last Active: Aug 27, 2018 | Replies (56)

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@angiede2001

I learned the symptoms of stage 5..didn't pay much attention to the other stages. I imagine if any of you have stage 5, you are pretty aware of the symptoms. The book had a list of the lab values in the back and what they mean. If any of you haven't done this education, it is thru Kidney Smart. I learned that Jack is NEVER to do any new meds or procedures, without running them by his kidney dr. There was like a 10 min. presentation on the all the types of dialysis and a checkoff sheet with the advantages of each one I thought the night peritoneal looked to be the simplest...but if he won't do it.... There were two web sites given to get recipes that are good for kidneys: "davita.com/diet helper"...the teacher said you could even get meal plans thru that one, but if you do, you have to sit down with a lot of time, to do it. the second one is "kidney.org/patients/kidney kitchen". DASH diet is good for low salt. I feel better if I can DO something, so collecting info...fear of the unknown is a BIG factor. I got a book from the library "Kidney Disease"...a Guide for living, by Walter Hunt. I am only on page 10, but so far, the book has talked about grief and depression, so good for me. Thank you for always saying such sweet things. You are also something I have done that helps. Lots of prayer also...Bible study and Scriptures...prayers about God giving us strength, etc.

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Replies to "I learned the symptoms of stage 5..didn't pay much attention to the other stages. I imagine..."

@angiede2001 Thanks for filling us in on what you have learned. I know that learning about a troubling problem can be very empowering and I sense that you are beginning to get empowered. I'm glad to hear that you are reading as well. We don't know how your husband might respond in the future to treatment, so what you are learning may help him down the road. I'm sure that your faith will sustain you as well. Prayers and best wishes to you at this Easter time. Teresa

@angiede2001, I have not connected with you for a while and I want to check in with you.
How are you doing since we last chatted?

If you feel up to it, I would like to ask you if you have any advice or references that might be helpful to a new member, @shelllady? She is facing similar dialysis considerations herself. You will be able to meet her in the Transplant Discussion Group
https://connect.mayoclinic.org/discussion/hello-all-my-name-is-rick-richards-i-have-come-to-a/

I understand if this is a topic you are uncomfortable with.
I continue to wish for peace and comfort to you and your husband.
Rosemary

Exhausted tonight...will try to at least give her the name of a book or 2 tomorrow and a website or 2