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Young Spousal Caregiver

Posted by elizajayne @elizajayne, Feb 21 12:44pm

I am 32 years old. We got have been married for 10 years and 6 months after we got married we found out that my husband had a degenerative neurological condition. So for 10 years I have been the "well spouse"/caregiver. There has been a lot of decline, including cognitively. I just want to know if there is anyone else that is in a similar situation, where they are a young spousal caregiver. We also have 2 young children.

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Becky, Volunteer Mentor | @becsbuddy | Nov 14 10:26pm
In reply to @madscientist "PS if you haven't investigated disability from the Social Security Administration I encourage you to get..." + (show)
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PS if you haven't investigated disability from the Social Security Administration I encourage you to get on it immediately. Most likely he will be covered but it can take a year to get it through the system. I have much experience here and would be happy to help save you a great deal of time and many headaches. It is worth it if he qualifies.

Greg

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@madscientist Hi, Greg, Mayo Clinic and I would like to see all the sharing here in this public place. The reason is that there are so many people out there who will benefit from what you say. They just haven’t joined MCC yet! And your wife would be a welcome addition! I hope you’ll understand and continue sharing. Becky

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Becky, Volunteer Mentor | @becsbuddy | Nov 14 10:35pm

@elizajayne You are doing such a difficult task and I hope you’ve only gotten good vibes from the others. I have much admiration for you and the tasks you are doing. Becky

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micheleday | @micheleday | 3 days ago
In reply to @ksa230 "My heart is with you. I am a younger spouse/ caregiver for my husband of 39..." + (show)
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My heart is with you. I am a younger spouse/ caregiver for my husband of 39 years. We have a significant age difference and still get judged for it, but for us, it worked. Our kids are raised, but he is in hospice care now for dementia decline and a failing heart. I reached out to a lot of support groups, therapists, hospices, and the like until I found people and companies that worked for us. It took years and lots of advocating to find the resources that work for our paradigm of care and love in this life transition. I am happy to connect privately if you're interested. You and your family will be in my thoughts and prayers.

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@ksa230

hello are you still on? michele

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