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Lipedema
How common is this disfiguring disease? My thighs are constantly changing in size, and the different sized lumps have become sore and subject to pain if tapped
or bumping into things. What type of doctor handles this?
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If no one at Mayo Clinic can treat this, Dr Gutowski in Chicago has been treating lipedema for over 20 years.
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1 ReactionDid you find out if there were any doctors at the Mayo Clinic who treat lipedema?
It seems crazy no one has posted to this topic for so long. I was finally diagnosed 18 months ago by a vascular doctor. My doctor is at Fairview Southdale clinic in the Twin Cities of Minnesota. In the fall of 2024 he told me Zepbound GLP-1 was showing promise on treating Lipedema. It has taken a full year to get it approved by my Medicare Part D insurance and it is still pricey but it has really helped with my pain. It has an anti inflammatory hormone in it which is not in the other GLP-1'S.
Welcome @sisubear, Thanks for sharing your experience and treatment for Lipedema. There are members posting about Lipedema in other discussions. Here's a search of Connect listing the comments - https://connect.mayoclinic.org/search/comments/.
There are some discussions on Zepbound GLP-1 if you want to scan through them: https://connect.mayoclinic.org/search/discussions/
I'm not sure if you have seen the Lipedema Foundation website, but they have a good list of resources for learning more about the condition: https://www.lipedema.org/resources.